Ann & Robert H. Lurie Childrens Hospital of Chicago Current CAP - - PDF document

Ann & Robert H. Lurie Children’s Hospital of Chicago Current CAP RESEARCH PROJECTS – PhD Faculty

Pritzker Department of Psychiatry and Behavioral Health Research Activities

January 31, 2019 Research Grants (current, and last 3 years) Chen, D. (PI), Finlayson, C., & Gordon, E. (2018-2020). Fertility Decision-Making in Youth and Young Adults. Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, R01 HD 097459. Total award: $435,169 Chen, D. (PI) (2018-2019). Neurocognitive correlates of pubertal suppression treatment among transgender youth. Lurie Children’s Foundation Research Grant, Ann & Robert

• H. Lurie Children’s Hospital of Chicago. Total award: $96,972

Chen, D. (Co-Investigator; MPIs: Mimiaga, M. & Garofalo, M). (2016-2021). Adaptive intervention strategies trial for strengthening adherence to antiretroviral HIB treatment among youth. National Institute of Nursing Research, National Institutes of Health, R01NR017098. $3,121,783 Chen, D. (Primary Mentor), Kyweluck, M. (PI). Summer 2017. Freezing for the future: Culturally mediated fertility preservation decisions among trans youth and parents. The Sexualities Project at Northwestern (SPAN) Summer Grant Award. $2,355. Chen, D. (PI), Gordon, E., Johnson, E., Finlayson, C., Woodruff, T., Garofalo, R. (2017). Development of a Fertility-Related Decision Aid for Transgender Youth and Their

• Parents. The investigators will conduct a decisional needs assessment of peripubertal

transgender youth and their parents in an effort to develop a patient-centered

Decision Aid About Fertility for Transgender Youth (DAAF-TY). Society of Pediatric Psychology, Targeted Research Grant. $20,000 Chen, D. (PI), Zelko, F., Johnson, T., & Garofalo, R. (2017-2018). Structured pubertal suppression readiness assessment for gender dysphoric youth. Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, R21 HD087839. $427,439 Chen, D. (PI), Hidalgo, M., Leibowitz, S. (2014-2016). Informing parent-focused intervention for gender-variant children. Lurie Children’s Research Center/CAP clinical- translational pilot study program A mixed-method study to identify, describe, and develop clinical programming to address the behavioral health needs of a clinic- referred, pre-pubertal sample of gender-variant children and their parents. $24,083. Chen, D. (PI), Johnson, E. K., Finlayson, C., Gordon, E., Woodruff, T. K., Garofalo, R. (2016- 2017). Research Excellence Award from the Chairman (REACH), Department of Psychiatry and Behavioral Sciences, Northwestern University Feinberg School of

• Medicine. Development of a Fertility-Related Decision Aid for Transgender Youth and

Their Parents. Clinical guidelines recommend counseling for transgender youth and their parents regarding fertility and reproductive options prior to initiating gender- affirming hormone treatment. The objective of this study is to conduct a decisional needs assessment of transgender youth and their parents in an effort to develop a patient-centered Decision Aid About Fertility for Transgender Youth (DAAF-TY). Total award, $25,000. Chen, D., (Co-Investigator; MPIs: R Garafalo, J. Olson-Kennedy, YM Chan; & S. Rosenthal) (2015-2020). NIH/NICHD R01-HD082554. The impact of early medical treatment in transgender youth. Multisite observational cohort study of psychosocial and anthropometric outcomes of peri-pubertal and pubertal youth seeking care in multidisciplinary academic medical settings. Total award $5.7 million (Lurie: $1.3 million Coyne, C (PI), Chen, D (Co-Investigator) (1/1/19-12/31/19). Collaborative Refinement of Group Curriculum for Transgender Youth with Social Anxiety Disorder. Society of Pediatric Psychology, Targeted Research Grant. Total award: $20,000 Ellis, D. (PI), Weissberg-Benchell, J. (Consortium PI), Evans, M. (Consortium Co-I) (2017- 2022). Effectiveness Trial of an E-Health Intervention To Support Diabetes Care in Minority Youth. R01DK110075-01A1 Direct Year 1 costs, $185,051. This is a

randomized effectiveness trial of a computer delivered brief intervention (“The 3Ms”) aimed at increasing parental motivation for supervision and monitoring of adolescent diabetes management. The intervention targets caregivers of young African American adolescents who are beginning to transition to independent self-care. The study investigates the effects of treatment dose on treatment outcomes and treatment effectiveness associated with adherence and metabolic control to determine the most effective conditions. Ford-Paz, R. E. (Co-PI), Day, G (Co-PI) (9/2016-2/2018). Evergreen Invitational Women’s Health Grant Initiative, Northwestern Memorial Foundation. Working on Womanhood (WOW): A Process Evaluation. Funding to conduct a process evaluation to assess fidelity and feasibility of implementation, acceptability, and utility/initial promise of newly refined curriculum for a multi-faceted school-based counseling program for

• girls. Total costs: $100,142.

Hood, K., Barnard, K., Weissberg-Benchell, J., Laffel, L. (Co PI’s) (2015-2019). Psychosocial Aspects of Artificial Pancreas (AP) Research Development and Validation of AP Specific Psychosocial Measures. Leona and Harry Helmsley Charitable Trust. This multi-site study will assess key stakeholders’ perceptions regarding benefits and barriers to artificial pancreas systems and will develop consistent, reliable and valid measures that research teams can use to assess psychological benefits and barriers. $363,788. Johnson, N., Weissberg-Benchell, J., Hood, K. (Co PI’s) (2015-2017). Training Psychology Post-Doctoral Fellows to become diabetes researchers and clinicians. Patterson Foundation/University of South Florida, Bringing Science Home. This multi-site training grant is designed to train and develop psychologists who are expert in both the clinical and research needs of individuals with type 1 diabetes. $157,500. Lowry, K. (PI) (03/1/14–08/312016). NUCATS. 3rd Year Follow-up of a Longitudinal Study to Explore Behavioral Factors Associated with Obesity in Preschoolers (Project EAT). Grant funded to collect a 3rd wave of data collection from participating families to continue the longitudinal data collection of Project EAT. Total direct costs: $30,168 Lowry, K. (2014-2016). Third-Year Follow-up of a Longitudinal Study to Explore Behavioral Factors Associated with Obesity in Preschoolers (Project EAT) Lurie Children’s Research Center/CAP clinical-translational pilot study program. Project EAT assessed 105 diverse parent-child dyads of 2- to 3-year-olds in their homes (objective height/weight measurements, questionnaires, videotaped mealtime observations) to examine parenting factors associated with child’s eating and weight status. This award extends the examination of the longitudinal nature of these parent-child interactions via a third wave of data collection. $30,168.

Malee, K. (2015-2020). Pediatric HIV/AIDS Adolescent Master Protocol (Site Co- Investigator). NIH 5U01HD052102-10. $149,269. Malee, K. (2015-2020). Surveillance Monitoring for ART Toxicities Study in HIV-Uninfected Children born to HIV-Infected Women. (Site Co-Investigator). NIH 5U01HD052102-

• 10. $323,490.

Malee, K. Co-Investigator (2014-2018). Multidisciplinary NeuroAIDS Research Training to Improve HIV Outcomes in Nigeria, Center for Global Health. D43TW009608 (Taiwo, B.). Project will develop research capacity at the National Center for Excellence in Neurosciences and Infectious Diseases in Nigeria, the University of Ibadan. $24, 206. Malee, K.: Co-Investigator (2014-2019). Determinants of Resilience in Youth with HIV Infection and Youth Affected by HIV. 1R01MH102151-01(Ananworanich, J.) This study seeks to identify positive attributes associated with strengths in cognitive, emotional and behavioral functioning in youth with HIV infection and in HIV-affected youth in Asia, including Thailand and Cambodia. $29.415. Malee, K. Consultant (2016-2018). Neurodevelopmental and neuroanatomical outcomes in early antiretroviral treated young children with perinatally-acquired HIV infection (PHIV) compared to age-matched perinatally HIV-exposed uninfected children (PHEU). Collaborative Initiative for Paediatric HIV Education and Research (CIPHER) (Jantarabenjakul, W.). 7-1-2016-6-30-2018. Malee, K. Co-Investigator (2015-2020). Pediatric HIV/AIDS Adolescent Master Protocol (Site Co-Investigator). NIH/NICHD. Multi-site longitudinal study of effects of perinatally acquired HIV infection on children and adolescents. $467,972. Malee, K. Co-Investigator (2015-2020). Surveillance Monitoring for ART Toxicities Study in HIV-Uninfected Children born to HIV-Infected Women. (Site Co-Investigator). NIH/NICHD. Multi-site longitudinal prospective study examining the effects of HIV exposure, antiretroviral medication and HIV infection on infants, children and adolescents, and young adults. $450,211. Malee, K. (2019-2020). The International Maternal Pediatric Adolescent AIDS Clinical Trials (IMPAACT) Network monitors investigations to decrease HIV incident infection including mother-to-child transmission (MTCT) of HIV and to decrease mortality/morbidity associated with HIV infection, co-infections, and co- morbidities in pregnant/postpartum women, children (including infants), and adolescents worldwide. (Scientific Leadership Group; IMPAACT 2015 psychologist). Malee, K. (2018-2023). Intensive Combination Approach to Rollback the Epidemic in

Nigeria (iCARE, Nigeria). This investigation will provide education, linkage to care, treatment support, and HIV-testing in the community to address major barriers to testing and treatment success among MSM individuals in Nigerian communities. (Co- investigator). Pahl, E. (PI), Grady, K., Weissberg-Benchell, J. (Co-investigator) (2013-2016). Pediatric Heart Transplantation: Transitioning to Adult Care. R34 HL111492-01A1. NHLBI

• grant. Multi-site study with from NWU to develop a transition-readiness program for

youth who have undergone heart transplant. Parkhurst, J. T (PI), (1/6/2018-12/31/2018). Chucker Aring Child and Adolescent Psychiatry Endowment, Medical College of Wisconsin. Funding to assess implementation of Social Fitness Club curriculum as after school social development programming. Total award: $15,000. Raviv, T. (PI), Cicchetti, C. (Co-Investigator), Rinaldi, J. (Co-Investigator), and Santiago, C. (Co-Investigator) (2014-2016). "Bounce Back" Replication Study. Illinois Children’s Healthcare Foundation. This study examines the effectiveness of a school-based intervention (“Bounce Back”) for young students (grades Kindergarten through 3) exposed to trauma. Recruitment and intervention will occur at 8 schools in Cicero,

• Illinois. The second year of the project will focus on dissemination of “Bounce Back” to

schools in Chicago and other areas of the state. $158,216. Seligman, R. (Co-PI), Ford-Paz, R. E. (Co-PI), Day, G (Co-PI). 6/2017-5/2019. The William T. Grant Foundation. Cultures of Care: Exploring Inequalities in Mental Health Services Among Mexican American Youth. Grant funded to examine how sociocultural and economic inequalities affect quality of mental health care for Mexican American

• adolescents. Total costs: $102,361.

Tarbell, SE & Fortunato, JE. Co-Principal Investigators, Stanley Manne Children’s Research Institute Summer Undergraduate Research Fellowship, Mentee: Abigail Otwell. Ann & Robert H. Lurie Children’s Hospital. Fellow stipend: 3,500. Weissberg-Benchell, J. (co-investigator; Damiano, E, PI) (2017-2021). NIDDK UC4

• DK108612. Final clinical studies for submission of a pre-market approval application
• n the FDA for Bionic Pancreas that automates type 1 diabetes management,

$127,094 Weissberg-Benchell, J. (PI) (2011-2018). Resilience Promotion in Teens With Type 1 Diabetes: Preventing Negative Outcomes. NIDDK R01 DK090030-01A1. This study examines whether a diabetes-specific adaptation of a resilience promoting, depression-prevention intervention for adolescents with type 1 diabetes will reduce

both the risk of poor psychological functioning and the risk of negative health

• utcomes over time. $3,252,974.

Weissberg-Benchell, J. (PI) (2014-2016). Assessing the Impact of Diabetes Camp on Daily Self- Care Behaviors and Psychosocial Well-Being. Leona and Harry Helmsley Charitable Trust. This study will assess the psychosocial impact of attending diabetes camp for youths ages 8-18. We will assess three areas of change: Diabetes-specific quality of life, Diabetes- specific emotional distress, and Diabetes-specific self-care behaviors. Recruitment will

• ccur at 42 different camps across the United States. $165,200.00 .

Weissberg-Benchell, J. (PI). 9/17 -8-/18. Improving transition from pediatric to adult diabetes care: A pilot study. Awarded by the University of Chicago Center for Diabetes Translation Research Pilot and Feasibility Grant (CCDRT). $25,000 Weissberg-Benchell, J. (PI). 7/18-7/20. Diabetes Post-Doctoral Fellowship. Funded through the Juvenile Diabetes Research Foundation.

(Refereed publications, books, book chapters,

• ther reports, last 3 years)

In press (including e-pubs ahead of publication)

Campo-Engelstein, L., & Chen, D. (in press). Ethical issues in pediatric and adolescent fertility preservation, Chapter 18. In Advances in Pediatric and Adolescent Oncofertility and Fertility Preservation for Individuals with Gender and Sex

• Diversity. New York, NY: Springer.

Charnay, A. J., Antisdel-Lomaglio, J. E., Zelko, F. A., Rand, C. M., Le M., Gordon, S. C., Vitez, S. F., Tse, J. W., Brogadir, C. D., Nelson, M. N., Berry-Kravis, E. M., & Weese-Mayer, D. E. (in press). Congenital central hypoventilation syndrome: Neurocognition already reduced in preschool-age children. Chest, 2015 Sep 17. doi: 10.1378/chest.15-0402. [Epub ahead of print]. Distel, L., Torres, S.A., Ros, A.M., Brewer, S.K., Raviv, T., Coyne, C. et al. (in press). Evaluating the implementation of Bounce Back: Clinicians’ perspectives on a school-based trauma intervention. Evidence-Based Practice in Child and Adolescent Mental Health. Finlayson, C., Chen, D., & Johnson, E.K. (In Press). Fertility preservation in patients with disorders of sex development. In T.K. Woodruff (Ed.) Textbook of Oncofertility Research and Practice. New York, NY: Springer.

Gottlieb, L, Reinecke, M.A., Martinovich, Z., & Meyers, K.M. (in press). Treatment for depression enhances protection: Findings from the Treatment for Adolescents with Depression Study (TADS). International Journal of Cognitive Therapy. Hasler, WL, Levinthal, DJ, Tarbell, SE, Adams, KA, Li, BUK, Issenman, RM, Sarosiek, I, Jaradeh, SS, Sharaf, RN, Sultan, S, Venkatesan, T. (In press). Cyclic Vomiting Syndrome: Pathophysiology, Co-Morbidities, and Future Research Directions. Neurogastroenterology and Motility. Hopkins, J., Gouze, K. R., Lavigne, J. V., Bryant, F. B. (in press). Multi-domain risk factors in early childhood and depression symptoms in 6-year-olds: A longitudinal pathway

• model. Development and Psychopathology.

Ibeziako, P., Brahmbhatt, K., Chapman, A., De Souza, C., Giles, L., Gooden, S., Latif, F., Malas, N., Namerow, L., Russell, R., Steinbuchel, P., Pao, M., Plioplys, S. (in press). Developing a Clinical Pathway for Somatic Symptom and Related Disorders in Pediatric Hospital Settings, accepted by Hospital Pediatrics. Koppen, I. J. N., Saps, M., Lavigne, J. V., Nurko, S., Taminiau, J. A. J. M., Di Lorenzo, C., Benninga,

• M. A. (in press). Recommendations for pharmacological clinical trials in children with

functional constipation: The Rome Foundation pediatric subcommittee on clinical

• trials. Neurogastroenterology & Motility. 2018;e13294, DOI: 10/1111/nmo.13294

Saps, M., van Tilburg, M., Lavigne, J. V., Miranda, A, Benninga, M., Taminiau, J., Di Lorenzo, C. (in press). Recommendations for pharmacological clinical trials in children with irritable bowel syndrome: The Rome Foundation pediatric subcommittee on clinical trials and The European Medicines Agency. Gastroenterology and Motility. Saps, M., van Tilburg, M., Lavigne, J. V., Miranda, A, Benninga, M., Taminiau, J., Di Lorenzo, C. (in press). Recommendations for pharmacological clinical trials in children with irritable bowel syndrome: The Rome Foundation pediatric subcommittee on clinical trials and The European Medicines Agency. Gastroenterology and Motility. Sharaf, RN, Venkatesan, T, Shah, R, Levinthal, DJ, Tarbell, SE, Jaradeh, SS, Hasler, WL, Issenman, RM, Adams, KA, Sarosiek, I, Stave, CD, Li, BUK, Sultan, S. (In press). Management of Cyclic Vomiting Syndrome in Adults: Evidence Review. Neurogastroenterology and Motility. Sharma, R., Plioplys, S. (in press) “ADHD, Methylphenidate, and Childhood Epilepsy” – a critical review. Pediatric Neurology Briefs. Tishelman, A., Sutter, M., Chen, D., Sampson, A., Nahata, L., Kolbuck, V.D., & Quinn, G.P.

(2019). Health care provider perceptions of fertility preservation barriers and challenges with transgender patients and families: Qualitative responses to an international survey. Journal of Assisted Reproduction and Genetics. DOI: 10.10007/s10815-018-1395-y. [online ahead of print 3 Jan 2019] Ventkatesan, T, Levinthal, DJ, Li, BUK, Li, Tarbell, SE, Adams, KA, Issenman, RM, Sarosiek, I, Jaradah, SS, Sharaf, RN, Sultan, S, Stave, CD, Monte, AA, Hasler, WL. (In press). Role of Chronic Cannabis Use: Cyclic Vomiting Syndrome vs. Cannabinoid Hyperemesis

• Syndrome. Neurogastroenterology and Motility.

Venkatesan,T, Levinthal, DJ, Tarbell, SE, Jaradeh, SS, Hasler, WL, Issenman, RM, Adams, KA, Sarosiek, I, Stave, CD, Sharaf, RN, Shahnaz, S, Li, BUK. (In press). Guidelines

• n Management of Cyclic Vomiting Syndrome in Adults by the American

Neurogastroenterology and Motility Society and the Cyclic Vomiting Syndrome

• Association. Neurogastroenterology and Motility.

Vesco, A. T., Feldman, M. A., Evans, M. A., & Weissberg-Benchell, J. (In Press). Parent- adolescent dyadic diabetes distress: Associations with A1c and diabetes-related

• strengths. Families, Systems & Health. doi: 10.1037/fsh0000358

Vesco, A., Garza, K., Jedraszko, A., Weissberg-Benchell, J. (2018). Continuous Glucose Monitoring (CGM) Associated with Less Diabetes-Specific Emotional Distress and Lower A1c Among Adolescents with Type 1 Diabetes. Journal of Diabetes Science and

• Technology. 12(4). 792-799.

Walkup, J. T., Cottingham, E. (2017). Antipsychotic-induced weight gain and metformin. Journal of the American Academy of Child and Adolescent Psychiatry. 2017 Oct;56(10):808-810. doi: 10.1016/j.jaac.2017.08.009. PubMed PMID: 28942801. Wang-Hall, J, LI, BUK, Tarbell, SE. (in press) Family health related quality of life in pediatric cyclic vomiting syndrome. Journal of Pediatric Gastroenterology and Nutrition. doi: 10.1097/MPG.0000000000001797

2018-2019 (academic year)

Chen, D., Kolbuck, V.D., Sutter, M., Tishelman, A.C., Quinn, G.P., & Nahata, L. (2018). Knowledge, practice behaviors, and barriers to fertility care among providers of transgender care. Journal of Adolescent Health. DOI: 10.1016/j.jadohealth.2018.08.025. [online ahead of print 26 Oct 2018] Chen, D., Birnkrant, J., & Hidalgo, M. (2019). Psychosocial considerations in pubertal suppression treatment, Chapter 6 (pp. 41-47). In C. Finlayson (Ed.) Pubertal Suppression in Transgender Youth. St. Louis, MO: Elsevier.

Chodzen, G., Hidalgo, M.A., Chen, D. & Garofalo, R. (2018). Factors associated with depression and anxiety among transgender and gender-nonconforming youth. Journal

• f Adolescent Health. DOI: 10.1016/j.jadohealth.2018.07.006. [online ahead of print 18

Sept 2018]. Feldman, M., Anderson, L.M., Shapiro, J., Jedraszko, A., Evans, M., Weil, L., Garza, K., & Weissberg-Benchell, J. (2018). Family-based interventions targeting improvements in health and family outcomes of children and adolescents with Type 1 diabetes: A systematic review. Current Diabetes Reports.18 (3) #15. Garza, K., Jedraszko, A., Weil, L., Naranjo, D., Barnard, K., Laffel, L., Hood, K., Weissberg- Benchell, J. (2018). Automated insulin delivery systems: Hopes and expectations of family members. Diabetes Technology and Therapeutics.20(3). 222-228. Shapiro, J., Vesco, A., Weil, L., Evans, M., Hood, K., Weissberg-Benchell, J. (2018). Psychometric properties of the Problem Areas in Diabetes: Teen and Parent of Teen

• Versions. Journal of Pediatric Psychology. 43(5). 561-571.

Smith, R., Huo, Y., Tassiopoulos, K., Rutstein R., Kapetanovic, S., Mellins, C., Kacanek, D., Malee, K. (2019). Mental health diagnoses, symptoms, and service utilization in US youth with perinatal HIV infection or HIV exposure. AIDS Patient Care and STDs, 33(1): 1-13.

2017-2018 (academic year)

Campo-Engelstein, L., & Chen, D. (2017). Ethical issues in pediatric and adolescent fertility preservation, Chapter 18 (pp. 259-267). In T.K. Woodruff & Y.C. Gosiengfiao (Eds.) Pediatric and Adolescent Oncofertility: Best Practices and Emerging Technologies. New York, NY: Springer. Campo-Engelstein, L, Chen, D., Baratz, A., Johnson, E.K., & Finlayson, C. (2017). Ethical considerations of fertility preservation for youth with differences (disorders) of sex development (DSD). Journal of the Endocrine Society, 1(6): 638-645. DOI: https://doi.org/10.1210/js.2017-00110 Chen, D., Bernardi, L.A., Pavone, M.E., Feinberg, E.C., & Moravek, M.B. (2018). Oocyte cryopreservation for transmasculine youth: A case series. Journal of Assisted Reproduction and Genetics, 35, 2057-2061. DOI: 10.1007/s10815-018-1292-4. Chen, D., Matson, M., Macapagal, K., Johnson, E.K., Rosoklija, I., Finlayson, C., Fisher, C.B., & Mustanski, B. (2018). Attitudes towards fertility and reproductive health among transgender and gender-nonconforming adolescents. Journal of Adolescent Health,

63(1): 62-68. DOI: 10.1016/j.jadohealth.2017.11.306. Chen, D., Edwards-Leeper, L., Stancin, T., & Tishelman, A. (2018). Advancing the practice of pediatric psychology with transgender youth: State of the science, ongoing controversies, and future directions. Clinical Practice in Pediatric Psychology, 6, 73-83. DOI: 10.1037/cpp0000229 Chen, D., & Simons, L. (2018). Ethical considerations in fertility preservation for transgender youth: A case illustration. Clinical Practice in Pediatric Psychology, 6, 93-100. DOI: 10.1037/cpp0000230 Chen, D., Hidalgo, M.A., & Garofalo, R. (2017). Parental perceptions of emotional and behavioral difficulties among prepubertal gender-nonconforming children. Clinical Practice in Pediatric Psychology, 5, 342-352. DOI: 10.1037/cpp0000217 Chen, D., Finlayson, C., Leeth, E., Yerkes, E. B., & Johnson, E. K. (2018). “I’m here to get taller and because I want to be a boy”: A case of Down-Turner mosaicism in a prepubescent gender-nonconforming child, Chapter 6 (pp. 91-104). In A. Janssen & S. Leibowitz (Eds.) Affirmative Mental Health Care for Transgender and Gender Diverse Youth: A Clinical Guide. Cham, Switzerland: Springer International Publishing. Grady, K., Van’t Hof, K., Adin-Cristian, A., Shankel,T., Chinnock, R., Miyamoto, S., Ambardekar, A., Anderson, A., Addonizio, L., Latif, F., Lefkowitz, D., Goldberg,L., Hollander, S., Pham, S., Weissberg-Benchell, J., Cool, N., Yancy, C., Pahl, E. (2017). Pediatric heart transplantation: Transitioning to adult care (TRANSIT): Baseline findings pediatric

• cardiology. Pediatric Cardiology. 39 (2). 354-364.

Hidalgo, M.A., Chen, D., Garofalo, R. & Forbes, C. (2017). Perceived parental attitudes of gender expansiveness: Development and preliminary factor structure of a self-report youth questionnaire. Transgender Health 2:1, 180-187. DOI: 10.1089/trgh.2017.0036 Hilliard ME, Iturralde E, Weissberg-Benchell J, Hood KK. (2017). The diabetes strengths and resilience measure for adolescents with type 1 diabetes (DSTAR-Teen): Validation of a new self-report measure. Journal of Pediatric Psychology, 42: 995-1005. Hilliard, M., De Wit, M., Wasserman, R., Butler, A., Evans, M., Weissberg-Benchell, J., & Anderson, B. (2018). Screening and support for emotional burdens of youth with type 1 diabetes: Strategies for diabetes care providers. Pediatric Diabetes. 19. 534-543. Hood, K., Iturralde, E., Rausch, J., & Weissberg-Benchell, J. (2018). Preventing Diabetes Distress in Adolescents With Type 1 Diabetes: Results One Year After Participation in the STePS Program. Diabetes Care. 41(8). 1623-1630.

Johnson, E.K., Rosoklija, I., Shurba, A., D’Oro, A., Gordon, E.J., Chen, D., Finlayson, C., Holl, J.L. (2017). Future fertility for individuals with differences of sex development: Parent attitudes and perspectives about decision-making. Journal of Pediatric Urology, 13(4): 402-413. DOI: 10.1016/j.jpurol.2017.06.002 Johnson, E.K., Rosoklija, I., Finlayson, C., Chen, D., Yerkes, E.B., Madonna, M.B., Holl, J.L., Baratz, A.B., Davis, G., & Cheng, E.Y. (2017). Attitudes toward “Disorders of sex development” nomenclature among affected individuals. Journal of Pediatric Urology, 2017 May 8.pii: S1477-5131(17)30183-3. DOI:10.1016/j.jpurol.2017.03.035 Kolbuck, V.D., Chen, D., Hidalgo, M.A., Chodzen, G., & Garofalo, R. (2017). Parental responses to children’s gender-nonconforming behavior: A qualitative analysis. Perspectives on Early Childhood Psychology and Education (PECPE), 2(2): 3-31. Koppen, I. J. N., Saps, M., Lavigne, J. V., Nurko, S., Taminiau, J. A. J. M., Di Lorenzo, C., & Benninga, M. A. (2018). Recommendations for pharmacological clinical trials in children with functional constipation: The Rome foundation pediatric subcommittee on clinical

• trials. Neurogastroenterology and Motility, 2018 Jan 30. doi: 10.1111/nmo.13294. [Epub

ahead of print] Kyweluk, M.A., Sajwani, A. & Chen, D. (2018). Freezing for the future: Transgender youth respond to medical fertility preservation. International Journal of Transgenderism. DOI: 10.1080/15532739.2018.1505575. [online ahead of print 8 Oct 2018] Mimiaga, M.M., Kuhns, L.M, Biello, K.B., Olson, J., Hoehnle, S., Santostefano, C.M., Hughto, J.M.W., Safi, H., Salhaney, P., Chen, D., & Garofalo, R. (2018). Positive STEPS – a randomized controlled efficacy trial of an adaptive intervention for strengthening adherence to antiretroviral HIV treatment among youth: Study protocol. BMC Public

• Health. DOI: 10.1186/s12889-018-5815-9. [online ahead of print 13 Jul 2018]

Miller, L., Leeth, E.A., Johnson, E.K., Rosoklija, I., Chen, D., Aufox, S.A., & Finlayson, C. (2018). Attitudes towards “Disorders of Sex Development” (DSD) nomenclature among physicians, genetic counselors, and mental health clinicians. Journal of Pediatric Urology, 14, 418.e1-418.e7. DOI:10.1016/j.jpurol.2018.08/009. Nahata, L., Chen, D., Moravek, M.B., Quinn, G.P., Sutter, M.E., Taylor, J., Tishelman, A.C., & Gomez-Lobo, V. (2018). Understudied and underreported: Fertility issues in Transgender Youth—A Narrative Review. Journal of Pediatrics. DOI: 10.1016/j.peds.2018.09.009. [online ahead of print 4 Oct 2018] Parkhurst, J. & Kawa, J. (2018). Childhood Autism Rating Scale. In: Kreutzer J., DeLuca, J. & Caplan B. (Eds.) The Encyclopedia of Clinical Neuropsychology, 2nd Edition. Springer.

Santiago, C.D., Raviv, T., Ros, A.M., Brewer, S.K., Distel, L.M.L., Torres, S.A., Fuller, A.K., Lewis, K., Coyne, C.A., Cicchetti, C., & Langley, A. (2018). Implementing the Bounce Back trauma intervention in urban elementary schools: A real world replication trial. School Psychology Quarterly, 33,1, 1-9. Santiago, C.D., Raviv, T., & Jaycox, L. (2018). Creating Healing School Communities: School- Based Interventions for Students Exposed to Trauma. Washington, DC: American Psychological Association. Wagoner, AL, Tarbell, SE, Shaltout, HA, Diz, DI, Weese-Mayer, DE, & Fortunato, JE. (2018) Chronic Nausea and Orthostatic Intolerance: Diagnostic Utility of Orthostatic Challenge Duration, Nausea Profile Questionnaire, and Neurohumoral

• Measures. Neurogastroenterology & Motility, DOI: 10.1111/nmo.13433

Wang-Hall, J, LI, BUK, Tarbell, SE. (2018) Family health related quality of life in pediatric cyclic vomiting syndrome. Journal of Pediatric Gastroenterology and Nutrition. doi: 10.1097/MPG.0000000000001797] Weissberg-Benchell, J., Hessler, D., Fisher, L, Russell, S., Polonsky, W.H. (2017) Impact of an automated bi-hormonal delivery system on Psychosocial Outcomes in Adults with Type 1 Diabetes. Diabetes Technology and Therapeutics. 19(12). 723-729. Weissberg-Benchell, J., & Shapiro, JB., (2017). A review of interventions aimed at facilitating successful transition planning and transfer to adult care among youth with chronic

• illness. Pediatric Annals. 46:182-187.

Weissberg-Benchell, J., Rychlik, K. (2017). Diabetes camp matters: Assessing families’ views

• f their diabetes camp experience. Pediatric Diabetes. 18 (8). 853-860.

Weissberg-Benchell, J., Hood, K., Laffel, L., Heinemann, L, Ball, D., Kowalski, A., Peters, A., Damiano, E., Schiller, M., Davis, A., Beck, S., Barnard, K. (2017). Toward development of psychosocial measures for automated insulin delivery. Journal of Diabetes Science and

• Technology. 10(3). 799-801.

Zelko, F. A., Stewart, T.M., Brogadir, C. D., Rand, C. M., Weese-Mayer, D. E. (2018). Congenital central hypoventilation syndrome: Broader cognitive deficits revealed by parent

• controls. Pediatric Pulmonology. 53(4):492-497.

2016-2017 (academic year)

Barnard, K., Weissberg-Benchell, J. (2016). Diabetes and partners. Diabetes Technology and

• Therapeutics. 8(5):278-279. PMID: 27159782.

Benson, M. A., Abdi, S. M., Ford-Paz, R. E. (2017). Practice Applications with Immigrant and Refugee Youth. In A. Hilado & M. Lundy (Eds.), Models for practice with immigrants and refugees: Collaboration, cultural awareness and integrative theory, (pp. 339-361). Thousand Oaks, CA : Sage. Chen, D., Simons, L, Johnson, E.K., Lockart, B.A. & Finlayson, C. (2017). Fertility preservation for transgender adolescents. Journal of Adolescent Health, 61(1): 120-123. DOI:10.1016/j.jadohealth.2017.01.022. Crowell, C.S., Malee, K. (2017). Neurocognition in viral suppressed HIV-Infected children. In: Shapshak P. et al. (eds) Global Virology II-HIV and NeuroAIDS. New York, NY, Springer. Fegan-Bohn, K., Weissberg-Benchell, J., DeSalvo, D., Gunn, S., & Hilliard, M., (2016). Camp for youth with diabetes. Current Diabetes Reports. 16:68. PMID: 27292106 Garvie, P.A., Brummel, S.S., Allison, S.M., Malee, K.M., Mellins, C.A., Wilkins, M.L.,Harris, L.L., Patton, E.D., Chernoff, M.C., Rutstein, R.M., Paul, M.E., Nichols, S.L. for the Pediatric HIV/AIDS Cohort Study (2017). Roles of medication responsibility, executive and adaptive functioning in adherence for children and adolescents with perinatally acquired HIV. Pediatric Infectious Diseases Journal, 36(8), 751-757. Gouze, K.R., Hopkins, J., Bryant, F. B., & Lavigne, J. (2017). Parenting and Anxiety: Bi- Directional Relations in Young Children. Journal of Abnormal Child Psychology, 45, 1169-1180. Fortunato, J. E., & Tarbell, S. E (2017). Nausea and vomiting in the pediatric patient. In: K L Koch and W L Hasler (eds.) Nausea and Vomiting, 2nd Edition, Springer, New York, NY,

• pp. 175-190.

Glynn, P., Eom, S., Zelko, F., Koh, S. (2016). Feasibility of a Mobile Cognitive Intervention in Childhood Absence Epilepsy. Frontiers in Human Neuroscience, 10:575. eCollection. Hermetet-Lindsay, K.D., Correia, K.F., Williams, P.L., Smith, R., Malee, K.M., Mellins, C.A., Rutstein, R.M. (2016). Contributions of disease severity, psychosocial factors, and cognition to behavioral functioning in US youth perinatally exposed to HIV. AIDS and Behavior, 1-13. Hinkle, C., Porter, J., Waldron, E., Klein, H., Tranel, D., & Heffelfinger, A. (2016). Neuropsychological characterization of three adolescent females with anti-NMDA receptor encephalitis in the acute, post-acute, and chronic phases: An inter- institutional case series. The Clinical Neuropsychologist, DOI: 10.1080/13854046.2016.1191676

Hoffenberg, EJ, Newman, H, Collins, C, Tarbell, S, Leinwand, K (2017). Cannabis and pediatric inflammatory bowel disease: Changes blossom a mile high. Journal of Pediatric Gastroenterology and Nutrition, 64, 265-271. Iturralde, E., Weissberg-Benchell, J., Hood, K. (2017) Avoidant coping and diabetes-related distress: Pathways to adolescents’ Type 1 diabetes outcomes. Health Psychology. 36(3), 236-244. PMID: 27808528. Johnson, E. K., Chen, D., Gordon, E. J., Rosoklija, I., Holl, J. L., & Finlayson, C. (2016). Fertility- related care for gender and sex diverse individuals: A provider needs-assessment

• survey. Transgender Health, 1:1, 197-201. DOI: 10.1089/trgh.2016.0030

Lai, J. .S, Bregman, C., Zelko, F., Nowinski, C., Cella, D., Goldman, S. (2017). Parent-reported cognitive function is associated with leukoencephalopathy in children with brain

• tumors. Quality of Life Research, 26, 2541-2550.

Landa, Y., Mueser, K. T., Wyka, K. E., Shreck, E., Jespersen, R., Jacobs, M. A., Griffin, K. W., van der Gaag, M., Reyna, V. F., Beck, A. T., Silbersweig, D. A., Walkup, J. T. (2016). Development of a group and family-based cognitive behavioural therapy program for youth at risk for psychosis. Early Intervention Psychiatry. 2016 Dec;10(6):511-521. doi: 10.1111/eip.12204. PubMed PMID: 25585830. Lavigne, J. V. (2016). Psychology in integrated pediatric primary care: Introduction to the special section. Journal of Pediatric Psychology.41, 1077-1080 Lavigne, J. V., Feldman, M., & Meyers, K. M. (2016). Screening for mental health problems: Addressing the base rate fallacy for a sustainable screening program in integrated primary care. Journal of Pediatric Psychology. On line in advance of publication. DOI: 10.1093/jpepsy/jsw048 Lavigne, J. V., Meyers, K. M., & Feldman, M. (2016). Systematic review: Classification accuracy of behavioral screening measures for use in integrated primary care settings. Journal of Pediatric Psychology. On line in advance of publication. DOI: 10.1093/jpepsy/jsw049 Lavigne, J.V., Gouze, K.R., Hopkins, J, Bryant, F.B. (2016) Multi-domain predictors of attention deficit/hyperactivity disorder symptoms in preschool children: Cross- informant differences. Child Psychiatry and Human Development, 46(2), 308-319. DOI: 10.1007/s10578-015-0616-1 Lavigne, J. V. (2016). Systematic review: issues in measuring clinically meaningful change in self-reported chronic pediatric pain intensity. Journal of Pediatric Psychology, 41, 715-

• 735. Doi: 10.1093/jpepsy/jsv161

Lavigne, J. V., Bryant, F. B., Hopkins, J., & Gouze, K. R. (2017). Age 4 predictors of Oppositional Defiant Disorder in early grammar school. 1-15, E-pub ahead of print Journal

• f Clinical Child Psychology. DOI: 10.1080/15374416.2017.1280806

Lewis-de los Angeles, C.P., Alpert, K.I., Williams, P.L., Malee, K., Huo, Y., Csernansky, J.G., Yogev, R., Van Dyke, R.B. Sowell, E.R., Wang, L. Deformed subcortical structures are related to past HIV disease severity in youth with perinatally-acquired HIV infection. Journal of the Pediatric Infectious Diseases Society, 2016; 5 (suppl 1): S6-14. Lewis-de los Angeles, C.P., Williams, P.L., Huo, Y., Wang, S.D., Uban, K.A., Herting, M.H., Malee, K., Yogev, R., Csernansky, J.G., Nichols, S., Van Dyke, R.B., Sowell, E.R., Wang, L. for the Pediatric HIV/AIDS Cohort Study (PHACS) and the Pediatric Imaging, Neurocognition, and Genetics (PING) Study (2017). Lower total and regional grey matter brain volumes in youth with perinatally acquired HIV infection: Associations with HIV disease severity, substance use and cognition. Brain, Behavior, and Immunity, 62, 100- 109. Malee, K., Chernoff, M.C., Sirois, P.A., Williams, P.L., Garvie, P.A., Kammerer, B.L., Harris, L.L., Nozyce, M.L., Yildirim, C., Nichols, S.L. for the Memory and Executive Functioning Study of the Pediatric HIV/AIDS Cohort Study (2017). Impact of perinatally acquired HIV disease upon longitudinal changes in memory and executive functioning. Journal

• f Acquired Immune Deficiency Syndromes, 75 (4), 455-464.

Malee, K.M., Smith, R.A., Mellins, C.A. (Editors) (2016). Brain and cognitive development among U.S. youth with perinatally acquired HIV infection. Journal of the Pediatric Infectious Diseases Society, 2016; 5 (suppl 1): S1-S5. Naranjo, D., Suttiratana, S., Iturralde, E., Barnard, K., Weissberg-Benchell, J., Laffel, L., & Hood, K. (2017). What end users and stakeholders want from automated insulin delivery systems. Diabetes Care. 40 (11). 1453-1461. Nichols, S.L., Chernoff, M.C., Malee, K.M., Sirois, P.A., Woods, S.P., Williams, P.L., Yildirim, C., Delis, D., Kammerer, B. Executive functioning in children and adolescents with perinatal HIV infection and perinatal HIV exposure. Journal of the Pediatric Infectious Diseases Society, 2016; 5 (suppl 1): S15-23.

Nichols, S.L., Chernoff, M., Malee, K., Sirois, P.A., Williams, P.L., Figueroa, V., Woods SP for the Memory and Executive Functioning Substudy of the Pediatric HIV Cohort Study. (2016). Learning and memory in children and adolescents with perinatal HIV infection and perinatal HIV exposure. Pediatric Infectious Disease Journal, 35(6), 649- 654. Silverman, A and Tarbell, S (2017). Feeding and vomiting problems in pediatric populations. In: MC Roberts and RG Steele (Eds.) Handbook of Pediatric Psychology, 5th Edition, Guilford Press, New York, pp. 401-415. Sirois, P., Chernoff, M., Malee, K., Garvie, P., Harris, L., Williams, P., Woods, S., Nozyce, M., Kammerer, B., Nichols, S. Associations of memory and executive functioning with academic and adaptive functioning among youth with perinatal HIV exposure and/or

• infection. Journal of the Pediatric Infectious Diseases Society, 2016; 5 (suppl1): S24-32.

Stewart, J, Boris, J, Chelimsky, G, Fischer, PR, Fortunato, J, Grubb, B, Heyer, G, Medow, M, Jarjour, I, Numan, M, Pianosi, P, Singer, W, Tarbell, S, Chelimsky, T. (2018) State of the art: Pediatric disorders of orthostatic intolerance. Pediatrics. 141 (1) e20171673; DOI: 10.1542/peds.2017-1673 Tarbell, S, Millar, A, Laudenslager, M, Palmer, C, Fortunato, JE. (2017). Anxiety and physiological responses to the Trier Social Stress Test for Children in adolescents with cyclic vomiting syndrome. Autonomic Neuroscience: Basic and Clinical, 202, 79-85. Tarbell, SE. Editor, Section on Psychological Considerations in Pediatric Gastrointestinal Disorders: Infantile Colic, Irritable Bowel Syndrome, Non-retentive Fecal Incontinence, Eating Disorders, Feeding Disorders and Dysphagia, and Factitious Disorder Imposed

• n Another. In: B UK Li and C Waasdorp-Hurtado (eds.) Second Edition of the Fellows

Concise Review of Pediatric Gastroenterology, Hepatology and Nutrition, National Association of Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN), 2016, pp. 745-766. Weissberg-Benchell, J. Hessler, D., Polonsky, W., Fisher, L. (2016). Psychosocial impact of the bionic pancreas during summer camp. Journal of Diabetes Science and Technology, 10(4), 840-844. PMID: 26993252 Weissberg-Benchell, J., Iturralde, E., Jedraszko, A., Rausch, J., Hood, K. (2016). A randomized clinical trial aimed at preventing poor psychosocial and glycemic outcomes in teens with type 1 diabetes (T1D). Contemporary Clinical Trials, 49, 78-84. PMID: 27267154 Weissberg-Benchell, J., Hood, K., Laffel, L., Heinemann, L, Ball, D., Kowalski, A., Peters, A., Damiano, E., Schiller, M., Davis, A., Beck, S., Barnard, K. (2016). Toward development of

psychosocial measures for automated insulin delivery. Journal of Diabetes Science and

• Technology. 10(3): 799-801. PMID: 26645792

Young N, Weil C, Tournis E: Redefining cochlear implant benefits to appropriately include children with additional disabilities. In Young, N, Iler Kirk, K (Eds.); Pediatric Cochlear Implantation Learning and the Brain. Springer-Verlag New York, 2016

2015-2016 (academic year)

Adejumo, O., Oladeji, B., Akpa, O., Malee, K., Baiyewu, O., Ogunniyi, A., Evans, S., Berzins, B., Taiwo, B. (2015). Psychiatric disorders and adherence to antiretroviral therapy among a population of HIV-infected adults in Nigeria. International Journal of STD &

• AIDS. Online September 18, 2015.

Barnard, K., Venkat, M., Heinemann, L, Weissberg-Benchell, J., Hood, K., Kowalski, A., Laffel, L. (2015). PsychDT: Working group report of psychosocial aspects of artificial pancreas

• systems. Journal of Diabetes Science and Technology, 9(4), 925-928.

Barnard, K., Hood, K., Weissberg-Benchell, J., Aldred, C., Laffel, L. (2015). Psychosocial assessment of artificial pancreas (AP): Commentary and review of existing measures and their applicability in AP research. Diabetes Technology and Therapeutics. 17(4); 295-300. Chen, D., Drabick, D. A. G., & Burgers, D. E. (2015). A developmental perspective on peer rejection, deviant peer affiliation, and conduct problems among youth. Child Psychiatry and Human Development, 46, 823-838. DOI: 10.1007/s10578-014-0522-y Chen, D., Hidalgo, M. A., Leibowitz, S., Leininger, J., Simons, L., Finlayson, C., & Garofalo, R. (2016). Multidisciplinary care for gender-diverse youth: A narrative review and unique model of gender-affirming care. Transgender Health, 1:1, 117-123. Finlayson, C., Johnson, E. K., Chen, D., Dabrowski, E., Gosiengfiao, Y., Campo-Engelstein, L., Rosoklija, I., Jacobson, J., Shnorhavorian, M., Pavone, M. E., Moravek, M., Bonifacio, H. J., Simons, L., Hudson, J., Fechner, P., Gomez-Lobo, V., Kadakia, R., Shurba, A., Rowell, E., & Woodruff, T. K. (2016). Proceedings of the working group session on fertility preservation for individuals with gender and sex diversity. Transgender Health, 1:1, 99-107. DOI:10.1089/trgh.2016.0008

Herting, M., Uban, K., Williams, P., Gautam, P., Huo, Y., Malee, K., Yogev, R., Csernansky, J., Wang, L., Nichols, S., Van Dyke, R., Sowell, E. (2015). Default mode connectivity in youth with perinatally-acquired HIV. Medicine, 94 (37), e1417. Kacanek, D., Malee, K., Mellins, C.A., Tassiopoulos, K., Smith, R., Grant, M., Lee, S., Siddiqui, D.Q., Puga, A. (2016). Exposure to violence and virologic and immunological outcomes among youth with perinatal HIV in the Pediatric HIV/AIDS Cohort Study. Journal of Adolescent Health, 59, 30-37. Kichler, J., Harris, M. & Weissberg-Benchell, J. (2015). Contemporary roles of the pediatric psychologist in diabetes care. In Current Diabetes Review’s Contemporary Faces

• f Diabetes Care for Youth and Young Adults in the 21st Century: Evolution in the Roles of

the Patient and Family, the Diabetes Provider, the Behavioral Health/Psychologist, and the Diabetes Online Community, 11 (4), 210-221. PMID 25901505. Jackson, C., Albanese-O’Neill, A., Butler, K., Chiang, J., Deeb, L., Hathaway, K., Kraus, E., Weissberg-Benchell, J., Yatvin, A., & Siminerio, L. (2015). Diabetes care in the school setting: A position statement of the American Diabetes Association. Diabetes Care, 38, 1958-1963. Lai, J. S., Nowinski, C. J., Zelko, F., Wortman, K., Burns, J., Nordli, D. R., Cella, D. (2015). Validation of the Neuro-QoL Measurement System in children with epilepsy. Epilepsy and Behavior, 46, 209-214. Lavigne, J. V., Gouze, K. R., Hopkins, J., Bryant, F. B. (2016). Multi-domain predictors of Attention Deficit/Hyperactivity Disorder symptoms in preschool children: Cross- informant differences. Child Psychiatry and Human Development, 46(2), 308-319. DOI: 10.1007/s10578-015-0616-1. Lavigne, J. V., & Saps, M. (2016) Pain measurement in children with functional abdominal

• pain. Current Gastroenterology Reports, 18(4), 1-8. DOI 10.1007/s11894-016-0493-1.

Lavigne, J. V., Gouze, K. R., Hopkins, J., Bryant, F. B. (2015). A multi-domain cascade model of early childhood risk factors associated with ODD symptoms in a community sample of 6-year-olds. Development and Psychopathology. DOI: 10/1017/S0954579415001194 Leibowitz, S., Chen, D., & Hidalgo, M. (2015). Gender dysphoria and nonconformity, Chapter 28. In M. Dulcan (Ed.) Dulcan’s Textbook of Child and Adolescent Psychiatry, Second Edition. Arlington, VA: American Psychiatric Publishing. Martini, D. R., Lavigne, J. V., Lowry, K. (2015). Physical disorders. In M. Dulcan (Ed.) Dulcan’s Textbook of Child and Adolescent Psychiatry, Second Edition. Arlington, VA: American Psychiatric Publishing.

Nichols, S.L., Chernoff, M., Malee, K., Sirois, P.A., Williams, P.L., Figueroa, V., Woods SP for the Memory and Executive Functioning Substudy of the Pediatric HIV Cohort Study. (2016). Learning and memory in children and adolescents with perinatal HIV infection and perinatal HIV exposure. Pediatric Infectious Disease Journal, 35(6), 649- 654. Nichols, S., Brummell, S. S., Smith, R. A., Garvie, P. A., Hunter, S. J., Malee, K. M., Kammerer, B. L., Wilkins, M. L., Rutstein, R., Tassiopoulos, K., Chernoff, M., Mellins, C. (2015). Executive functioning in children and adolescents with perinatal HIV infection. Pediatric Infectious Diseases Journal, 34, 969-975. Plioplys, S., Asato, M. R., Zelko, F. A. (2015). Neurological examination, electroencephalography, neuroimaging, and neuropsychological testing. In M.K. Dulcan (Ed). Dulcan’s Textbook of Child and Adolescent Psychiatry, 2nd Edition. Arlington, VA: American Psychiatric Publishing. 89-102 (2015). Sirois, P., Arons, L., Montepiedra, G., Pearson, D. A., Kapetanovic, S., Williams, P., Garview, P. A., Nozyce, M. L., Malee, K., Nichols, S. L., Kammerer, B. L., Mitchell, W. G., Mintz, M., Oleske, J. M. for the IMPAACT/PACTG 219 C team. (2016). Stimulant medications and cognition, behavior, and quality of life in children and youth with HIV. Pediatric Infectious Diseases Journal, 35(1):e12-8. Leibowitz, S., Chen, D., & Hidalgo, M. (2015). Gender Dysphoria and Nonconformity, Chapter 28. In M. Dulcan (Ed.) Dulcan’s Textbook of Child and Adolescent Psychiatry, Second Edition. Arlington, VA: American Psychiatric Publishing. Martini, D. R., Lavigne, J. V., Lowry, K. (2015). Physical disorders. In M. Dulcan (Ed.) Dulcan’s Textbook of Child and Adolescent Psychiatry, Second Edition. Arlington, VA: American Psychiatric Publishing. Plioplys, S., Asato, M. R., Zelko, F. A. (2015). Neurological Examination, Electroencephalography, Neuroimaging, and Neuropsychological Testing. In M.K. Dulcan (Ed). Dulcan’s Textbook of Child and Adolescent Psychiatry, 2nd Edition. Arlington, VA: American Psychiatric Publishing. 89-102 (2015). ABSTRACTS/POSTERS/PRESENTATIONS

National, regional and international meetings, last 3 years

2018-2019

Boswell, L., Russow, A., Weck, M., Santella, M.K., Weissbourd, M., DeRegnier, R.A. (2018, October). Assessment of Motor Development Using the Movement Assessment Battery for Children 2nd Edition in Preschool Children with High Risk Medical and Surgical Conditions. PowerPoint presented at annual AACPDM Conference in Cincinatti, OH. Chen, D. (2019, August). Role of family support and acceptance in gender expansive youth

• adjustment. In C.L. Olezeski (Chair), Minority Stress & The Impact of Acceptance for

Transgender Youth: Policy & Practice Implications. Symposium accepted for presentation at the American Psychological Association Convention, Chicago, IL. Chen, D., Axelrad, M.E., Placencia, F.X., & Tishelman, A. (2019, April). Ethical considerations in DSD care across the developmental spectrum. Abstract accepted for a professional development session at the annual meeting of the Society of Pediatric Psychology, New Orleans, LA. Chen, D., Kyweluk, M.A.*, Sajwani, A.*, Gordon, E.J., Johnson, E.K., Finlayson, C., & Woodruff, T.K. (2018, April). Knowledge of fertility and reproductive health options among transgender adolescents and young adults. In D. Chen (Chair), Advancing Fertility and Reproductive Health Counseling in Pediatrics. Symposium presented at the annual meeting of the Society of Pediatric Psychology, Orlando, FL. Chen, D., Kyweluk, M.A.*, Sajwani, A.*, Gordon, E.J., Johnson, E.K., Finlayson, C., & Woodruff, T.K. (2019, March). Factors impacting fertility preservation decision-making among transgender adolescents and young adults. Poster accepted for presentation at the annual meeting of the Society for Adolescent Health and Medicine, Washington, DC. Chen, D., Lash, B., Hidalgo, M.A., Muldoon, A.L., Liu, E., Jensen, J., Kim, E., Grabert, R., Chan, Y.M., Garofalo, R., & Tishelman, A. (2018, November). A comparison of psychosocial characteristics between transgender youth enrolling vs. not enrolling in a multisite research study. Poster presentation at the biennial meeting of the World Professional Association of Transgender Health, Buenos Aires, Argentina. Chen, D. (2018, October). Gender development in childhood and adolescence. In L. Schechter (Chair), Gender Confirmation Surgeries: Standards of Care and Development of Gender

• Identity. Invited presentation for the annual meeting of the American Society of Plastic
• Surgery. Chicago, IL.

Crerand, C.E., Kapa, H., Chan, Y.M., Nahata, L., Hansen-Moore, J., Chen, D., Buchanan, C., & Tishelman, A. (2019, April). Risk and resiliency in youth and young adults with differences of sex development (DSD). In C. Crerand (Chair), Risk and Resiliency among Persons with Disorders/Differences of Sex Development (DSD) and their Caregivers. Symposium accepted for presentation at the annual meeting of the Society of Pediatric

Psychology, New Orleans, LA. Crerand, C.E., Kapa, H., Chan, Y.M., Nahata, L., Hansen-Moore, J., Chen, D., Buchanan, C., & Tishelman, A. (2019, April). Risk and resiliency in youth and young adults with differences of sex development (DSD). Poster accepted for presentation at the annual meeting of the Society of Pediatric Psychology, New Orleans, LA. Curry, C., Raviv, T., Baker, S., Gill, T., Coyne, C., Rivera, C., and Holley, C. (2018, October). Let your data do the talking: building trauma-informed schools through comprehensive needs assessment and action planning. In T. Raviv (Chair), Critical Components of Planning and Practice toward Creating Trauma-Informed Schools. Symposium presented at the 23rd Annual Conference on Advancing School Mental Health, Las Vegas, NV. DeRegnier, R.A., Weissbourd, M., Weck, M., Santella, M.K., Russow, A., Fjørtoft, T., Adde, L., Boswell, L. (2018, October). Preschool Predictive Value of Abnormal General Movements at 10-15 weeks corrected age in High Risk Infants. PowerPoint presented at annual AACPDM Conference in Cincinatti, OH. DeRegnier, R.A., Weissbourd, M., Weck, M., Santella, M.K., Russow, A., Fjørtoft, T., Adde, L., Boswell, L. (2018, May). Preschool Predictive Value of Abnormal General Movements at 10-15 weeks corrected age in High Risk Infants. PowerPoint presented at annual PAS Conference in Toronto, Canada. D’Oro, A., Rosoklija, I., Jacobson, D.L., Finlayson, C., Chen, D., Tu, D., Nahata, L., Kokorowski, P., Yerkes, E.B., Cheng, E.Y., & Johnson, E.K. (2018, September). Attitudes toward “disorders of sex development” nomenclature: A multi-institutional survey of affected individuals and caregivers. Moderated poster presentation at the annual Society for Pediatric Urology Fall Congress, Atlanta, GA. Finney, E.L., Johnson, E.K., Corkum, K.S., Chen, D., Yerkes, E.B., Rowell, E.E., Madonna, M.M., & Finlayson, C.A. (2018, September). Fertility preservation for children with differences (disorders) of sex development: A review of six cases. Moderated poster presentation at the annual Society for Pediatric Urology Fall Congress, Atlanta, GA. Goldenthal, H.J., Raviv, T., Baker, S., Cicchetti, C., & Gouze, K. (2018, May). Factors Promoting the Successful Implementation of Tier II Interventions. Poster presented at the 30th Annual Convention of the Association of Psychological Science, San Francisco, CA. Kolbuck, V.D., Muldoon, A.L., Hidalgo, M.A., & Chen, D. (2019, April). Psychological and family functioning among prepubertal gender-expansive children. Poster accepted for presentation at the annual meeting of the Society of Pediatric Psychology, New Orleans, LA.

Lohs, S., Parkhurst, J. T., Massey, W. (2018, July). Shaping social skills in context. Presented at the annual meeting for the Association for Contextual Behavior Sciences, Montreal, Canada. Parkhurst, J. T. (2018, October) Consultation and Empowerment: Guidance for Academic and Behavioral Concerns at School. Pediatric Mental Health in Primary Care, Pewaukee, WI. Raviv, T., Curry, C., deGruy, E., Villaverde, V., Wong, M., Vona, P, and Cicchetti, C. (2018, October). T. Raviv (Chair), C. Cicchetti (Discussant), Critical Components of Planning and Practice Toward Creating Trauma-Informed Schools. Symposium presented at the 23rd Annual Conference on Advancing School Mental Health, Las Vegas, NV. Sajwani, A., Kyweluk, M.A., & Chen, D. (2018, September). ‘What are some things you were first worried about?: A qualitative assessment of initial concerns experienced by transgender adolescents and young adults. Poster presentation at the annual Midwest LGBTQ Health Symposium, Chicago, IL. Sofer, J., D’Oro, A., Rosoklija, I., Chen, D., Finlayson, C., & Johnson, E.K. (2018, September). Prenatal sex determination among the general public: Impact of cell free DNA testing and knowledge of DSD. Moderated poster presentation at the annual Society for Pediatric Urology Fall Congress, Atlanta, GA. Weissbourd, M., Russow, A., Boswell, L., DeRegnier, R.A. (2018, October). Uneven Learning Patterns in Preschool Children with High Risk Neonatal Medical and Surgical

• Conditions. Poster presented at annual AACPDM Conference in Cincinatti, OH.

2017-2018 Baker, S., Cicchetti, C., Coyne, C., Raviv, T., Gill, T., & Smith, M. (2017, October). Building a Trauma-Informed School District: Strategies and Examples from Three School Districts in Illinois. Poster presented at the 22nd Annual Conference on Advancing School Mental Health. National Harbor, MD. Chen, D. (2018, July). The Why, What, When, and How of DSD/Intersex Disclosure to Affected

• Youth. Invited presentation for the annual AIS-DSD Support Group Conference.

Chicago, IL. Chen, D. (2018, July). WPATH Readiness Assessment Model for Medical Decision-Making: Is There a Role for Adaptation for Youth with DSD? Invited lecture for 8-hour CME on

Psychosocial Interventions for People with DSD/Intersex Traits at All Ages and Stages. Chicago, IL. Chen, D., Kolbuck, V.*, Nahata, L., Tishelman, A. & Quinn, G. (2018, April). Fertility-related practice behaviors among pediatric transgender health providers. Poster presented at the annual meeting of the Society of Pediatric Psychology, Orlando, FL. Chen, D., Kyweluk, M.A.*, Sajwani, A.*, Gordon, E.J., Johnson, E.K., Finlayson, C., & Woodruff, T.K. (2017, November). Knowledge of fertility and reproductive health

• ptions among transgender adolescents and young adults. Poster presented at the

annual meeting of the Oncofertility Consortium, Chicago, IL. Chodzen, G., Hidalgo, M.A., Chen, D. & Garofalo, R. (2017, November). Negative future expectations and gender identity congruence as predictors of depression and anxiety in gender-diverse adolescents: A moderational analysis. Poster presented at the annual meeting of the Association of Behavioral and Cognitive Therapies, San Diego, CA. Corkum, K.S., Finlayson, C.A., Chen, D., Cheng, E.Y., Johnson, E.K., Yerkes, E.B., Rowell, E.E., & Madonna, M.M. (2018, May). Gonadal tissue cryopreservation for children with disorders of sex development. Abstract presentation at the annual meeting of the American Pediatric Surgical Association, Palm Desert, CA. Corkum, K.S., Finlayson, C.A., Chen, D., Cheng, E.Y., Johnson, E.K., Yerkes, E.B., Rowell, E.E., & Madonna, M.M. (2017, November). Gonadal tissue cryopreservation for children with disorders of sex development. Poster presented at the annual meeting of the Oncofertility Consortium, Chicago, IL.

1.

Deregnier, R.A., Weck, M., Santella, M.K., Russow, A., Weissbourd, M., Patrick, C., Boswell, L. (2017, September). Neuro-sensory Motor Developmental Assessment (NSMDA) at 18-24 months Predicts Quality of Life at 3 ½ to 5 years. Presented at annual AACPDM Conference in Montreal, Quebec, Canada. Deregnier, R.A., Boswell, L., Weck, M., Russow, A., Weissbourd, M. (2017, May). Developmental Challenges Are Associated with Preschool Quality of Life in High-Risk

• Children. Presented at annual EACD conference in Amsterdam, Netherlands.

Deregnier, R.A., Weck, M., Santella, M.K., Russow, A., Weissbourd, M., Patrick, C., Boswell, L. (2017, May). Neuro-sensory Motor Developmental Assessment (NSMDA) at 18-24 months Predicts Quality of Life at 3 ½ to 5 years. Presented at annual EACD conference in Amsterdam, Netherlands.

Deregnier, R.A., Boswell, L., Weck, M., Russow, A., Weissbourd, M. (2017, May). Developmental Challenges Are Associated with Preschool Quality of Life in High-Risk

• Children. Presented at annual Pediatric Academic Societies Meeting in San Francisco, CA.

Ernst, M.M., Chen, D., Gardner, M., Sandberg, D.E., & in collaboration with the DSD-TRN Psychosocial Workgroup (2018, April). Multi-dimensional exploration of the self- concept of youth with DSD. In D. Chen (Chair), Advancing Understanding of Psychosocial Implications of Disorders/Differences of Sex Development (DSD). Symposium presented at the annual meeting of the Society of Pediatric Psychology, Orlando, FL. Ernst, M., Chen, D., Kennedy, K., Jewell, T., Sajwani, A.*, Foley, C., Sandberg, D.E., in collaboration with the DSD-TRN Psychosocial Workgroup and Accord Alliance (2017, September). DSD online healthcare content: A survey of quality at US pediatric websites. Poster presentation at the annual meeting of the Pediatric Endocrine Society, Washington, DC. Finlayson, C., Chen, D., Lockart, B., Leeth, E., Johnson, E.K., Madonna, M.B., Cheng, E.Y., & Yerkes, E. (2017, November). A reminder to think outside the box: Use of fertility preservation options for girl with an unusual presentation of mixed gonadal dysgenesis. Poster presented at the annual meeting of the Oncofertility Consortium, Chicago, IL. Finney, E.L., Finlayson, C., Rosoklija, I., Chen, D., Leeth, E., & Johnson, E.K. (2018, May). Prenatal detection and evaluation of differences of sex development and impact of genetic counseling. Podium presentation at the annual meeting of the American Urological Association, San Francisco, CA. Finney, E.L., Johnson, E.K., Corkum, K.S., Chen, D., Yerkes, E.B., Rowell, E.E., Madonna, M.M., & Finlayson, C.A. (2018, May). Fertility preservation for children with differences (disorders) of sex development: A review of six cases. Poster presentation at the annual meeting of Pediatric Academic Societies (PAS), Toronto, CA. Ford-Paz, R. E., Garcia, N., Glusman, M., Abraham, A., Shim, S., Cicchetti, C., Coyne, C., Lopez, A., & Bayldon, B. (2016, July). Providing culturally competent, trauma-informed services to Latino refugees/unaccompanied minors in an urban pediatric hospital. Poster presented at the 41st annual National Association of Hispanic Nurses Conference, Chicago, IL. Ford-Paz, R. E., Rivera, C., Rusch, D., Cicchetti, C. (2017, May). Needs assessment informing policy and capacity building initiatives: Trauma-informed services for refugee/immigrant children and families. Poster presented at the 29th annual Association for Psychological Science Convention, Boston, MA.

Ford-Paz, R. E., Crown, L., Goldenthal, H., Lawton, K., Day, G., Coyne, C., Gill, T., Harris, N., Blakemore, S., Cicchetti, C. (2017, October). Working on Womanhood: Becoming an Evidence-based Intervention. Poster presented at the 22nd Annual Conference on Advancing School Mental Health, National Harbor, MD.

2.

Gill, T., Cicchetti, C., Baker, S., Raviv, T., & Kolski, C. (2017, October). Behavioral Health Team Multidisciplinary Tier II Screening and Identification Model: Lessons Learned from District-Wide Dissemination in Chicago. Poster presented at the 22nd Annual Conference on Advancing School Mental Health, National Harbor, MD. Goldenthal, H.J., Coyne, C., Dunlap, S., Raviv, T., Cicchetti, C., & Gouze, K. (2017, October). Evaluating the effectiveness of school-based trainings on knowledge acquisition in school personnel by role. Poster presented at the 22nd Annual Conference on Advancing School Mental Health, National Harbor, MD. Kolbuck, V., Nahata, L., Tishelman, A. Quinn, G., & Chen, D. (2017, November). Fertility related practice behaviors among pediatric transgender health providers. Poster presented at the annual meeting of the Oncofertility Consortium, Chicago, IL. Kyweluk, M.A., Sajwani, A., & Chen, D. (2018, April). Freezing for the future: Costs, culture, and fertility preservation decisions in trans youth. In J. Rutherford and R. Nelson (Chairs), The False Meritocracy of Choice Within Social Constructs of Health. Symposium presented at the annual meeting of the American Association of Physical Anthropologists, Austin, TX. Kyweluk, M.A.*, Sajwani, A.*, & Chen, D. (2017, November). Freezing for the future: Culturally mediated fertility preservation decisions in transgender youth. Poster presented at the annual meeting of the American Anthropological Association, Washington, DC. Rosoklija, I., D’Oro, A., Chen, D., Finlayson, C., & Johnson, E.K. (2017, September). Clinician communication at initial DSD diagnosis: Parental perspectives. Podium presentation at the Society of Pediatric Urology Fall Congress, Montreal, Canada. Schrandt, D., Ford-Paz, R. E., & Avelar, D. (2017, October). Immigration update: How to support our students during challenging times. Pre-conference session at the 29th Annual Conference of the National Association for the Education of Homeless Children and Youth, Chicago, IL.

2016-2017

Campo-Engelstein, L, Chen, D., Baratz, A., Johnson, E.K., & Finlayson, F. (2016, November). Ethical considerations of fertility preservation for youth with differences (disorders) or

sex development (DSD). Poster presented at the annual meeting of the Oncofertility Consortium, Chicago, IL. Chen, D., Simons, L., Johnson, E.K., & Finlayson, C. (2017, February). Fertility preservation for transgender adolescents. Poster presented at the biennial meeting of the United States Professional Association of Transgender Health, Los Angeles, CA. Chen, D., Simons, L., Johnson, E.K., & Finlayson, C. (2017, March). Fertility preservation for transgender adolescents: A retrospective chart review. Poster accepted for presentation at the annual meeting of the Society for Pediatric Psychology, Portland, OR. Chen, D., Edwards-Leeper, L., Stancin, T., & Tishelman, A. (2017, March). Ethical dilemmas in transgender health care. Workshop accepted for presentation at the annual meeting of the Society of Pediatric Psychology, Portland, OR. Chen, D., Matson, M., Macapagal, K., Rosoklija, I., Finlayson, C., Fisher, C.B., Mustanski, B., & Johnson, E.K. (2017, April). Attitudes towards fertility and reproductive health among transgender adolescents. Moderated poster accepted for presentation at the annual meeting of the American Urology Association, Boston, MA. Chen, D., Edwards-Leeper, L., Stancin, T., & Tishelman, A. (2017, August). Ethical dilemmas in pediatric transgender health care. Workshop accepted for presentation at the annual meeting of the American Psychological Association, Washington, DC. Evans, M. Feldman, M., Weil, L., & Weissberg-Benchell, J. (2016, October). Validation of a diabetes self-care measure for parents of children with type 1 diabetes. Poser presented at the International Society for Pediatric and Adolescent Diabetes Annual Conference, Valencia, Span. Evans, M., Feldman, M., Weil, L., Weissberg-Benchell, J. (October, 2016). Validation of a Diabetes Self-Care Measure for Parents of Children with Type 1 Diabetes. Poster presented at the 42nd annual conference of the International Society of Pediatric and Adolescent Diabetes. Valencia, Spain. Finlayson, C., Chen, D., Lockart, B., Leeth, E., Johnson, E.K., Madonna, M.B., Cheng, E.Y., & Yerkes, E. (2017, June). A reminder to think outside the box: Use of fertility preservation

• ptions for girl with an unusual presentation of mixed gonadal dysgenesis. Poster

accepted for presentation at the biennial meeting of the I-DSD (International Disorders

• f Sex Development) Symposium, Copenhagen, Norway.

Forbes, C., Hidalgo, M., Chen, D., & Jondle, B. (2017, February). Parental support of

transgender youth: Development of a clinical and research measure. Oral presentation at the biennial meeting of the United States Professional Association of Transgender Health, Los Angeles, CA. Goldenthal, H., Coyne, C., Dunlap, S., Raviv, T., Cicchetti, C., & Gouze, K. (2017, May). Building trauma-informed schools: Assessing the effectiveness of school-based trainings on knowledge acquisition in school personnel. Poster presented at the Association for Psychological Science 29th Annual Convention, Boston, MA. Johnson, E. K., Rosoklija, I., Shurba, A., Gordon, E. J., Chen, D., Finlayson, F., & Holl, J. L. (2016, September). Future fertility for individuals with differences of sex development: Parent attitudes and perspectives about decision-making. Moderated poster presented at the Society for Pediatric Urology Fall Congress, Dallas, TX. Johnson, E. K., Rosoklija, I., Shurba, A., Gordon, E. J., Chen, D., Finlayson, F., & Holl, J. L. (2016, November). Future fertility for individuals with differences of sex development: Parent attitudes and perspectives about decision-making. Poster presented at the annual meeting of the Oncofertility Consortium, Chicago, IL. Kennedy, K., Ernst, M., Chen, D., Foley, C., Jewell, T., Sajwani, A.*, Sandberg, D.E., in collaboration with the DSD-TRN Psychosocial Workgroup and Accord Alliance (2017, June). DSD online healthcare content: A process to evaluate quality of material. Poster presentation at the biennial meeting of the I-DSD (International Disorders of Sex Development) Symposium, Copenhagen, Norway. Kyweluk, M.A., Sajwani, A., & Chen, D. (2017, August). Freezing for the future: Culturally mediated fertility preservation decisions in transgender youth. Panel presentation at the Making Medical Innovation Ethical conference, Boston, MA. Laffel, L., Barnard, K., Hood, K., Weissberg-Benchell, J., Miller, K. (February, 2017). Perspectives

• f health care professionals (HCPs) on diabetes technologies: Insulin Pumps, Continuous

Glucose Monitors, and automated insulin delivery systems. Poster presented at the 10th International Conference on Advanced Technologies and Treatments for Diabetes. Paris, France. Malee, K. Cognitive outcomes among children and adolescents with HIV infection in Thailand and Cambodia. Oral presentation at 19th Bangkok International Symposium on HIV Medicine 2017, Resilience Investigators Meeting, January 16, 2017, Bangkok, Thailand. Malee, K. Improving long-term neurobehavioral outcomes in adolescents with HIV infection. Symposium, Resilience Investigators Meeting, January 19, 2017, Bangkok, Thailand.

Miller, L., Leeth, E.A., Johnson, E.K., Rosoklija, I., Chen, D., Aufox, S.A., Cheng, E. Y., & Finlayson, C. (2017, June). Attitudes towards “Disorders of Sex Development” (DSD) nomenclature among physicians, genetic counselors, and mental health clinicians. Poster presentation at the biennial meeting of the I-DSD (International Disorders of Sex Development) Symposium, Copenhagen, Norway. Naranjo, D., Suttiratana, S., Barnard, K., Laffel, L, Weissberg-Benchell, J., Hood, K. (February, 2017). The influence of psychosocial factors on interest in and use of automated insulin delivery systems: Perspectives of youth with type 1 diabetes and their parents. Poster presented at the 10th International Conference on Advanced Technologies and Treatments for Diabetes. Paris, France. Raviv, T. (discussant, 2016, October). Strategic Implementation Recommendations to Enhance Adoption, Sustainability, and Quality of School-Based Interventions. In C.D. Santiago and T. Raviv (Chairs), Implementing School-based Interventions: Promoting Effectiveness, Adoption, and Engagement. Symposium presented at the Association of Behavioral and Cognitive Therapy Annual Meeting, New York, NY. Santiago, C.D., Brewer, S.K., Torres, S.A., Papadakis, J.L., Raviv, T., Coyne, C., & Cicchetti, C. (2016, October). Effectiveness and Acceptability of a School-Based Intervention for Elementary Students Exposed to Trauma. In C.D. Santiago and T. Raviv (Chairs), Implementing School-based Interventions: Promoting Effectiveness, Adoption, and

• Engagement. Symposium presented at the Association of Behavioral and Cognitive

Therapy Annual Meeting, New York, NY. Shapiro, J., Evans, M., Vesco, A., Hood, K., Antisdel, J., Weissberg-Benchell, J. (October, 2016). Validation of the Problem Areas of Diabetes Measure - Parents of Teens: Associations with Psychosocial and Metabolic Outcomes. Poster presented at the 42nd annual conference of the International Society of Pediatric and Adolescent Diabetes. Valencia, Spain. Suttiratana, S., Naranjo, D., Hood, K., Laffel, L, Weissberg-Benchell, J., Barnard, K. (February, 2017). The influence of psychosocial factors on interest in and use of automated insulin delivery systems: Perspectives of adults with type 1 diabetes and partners. Poster presented at the 10th International Conference on Advanced Technologies and Treatments for Diabetes. Paris, France. Tarbell, S. The value of cognitive behavioral therapy in the management of autonomic

• disorders. Workshop for Primary Care: Partnering to prevent falls in neurogenic
• rthostatic hypotension, postural orthostatic tachycardia syndrome and syncope.

American Autonomic Society Annual Meeting, Clearwater, FL, November 2017

Tarbell, S. Psychological Comorbidities: Supporting Resilience. Ehlers-Danlos Syndromes and Associated Comorbidities. CME conference, Children’s Hospital Colorado, March 2, 2018. Vesco, A., Weissberg-Benchell, J. (February, 2017). Continuous glucose monitoring (CGM) associated with less diabetes-specific emotional distress and lower A1C among adolescents with type 1 diabetes. Poster presented at the 10th International Conference

• n Advanced Technologies and Treatments for Diabetes. Paris, France.

Vesco, Anthony, Feldman, M., Evans, Meredyth, & Weissberg-Benchell, J. (2017, March). Parent-youth agreement on diabetes-related distress: Associations with type 1 diabetes (T1D) strengths and glycemic control. Accepted for presentation at the Society for Pediatric Psychology Annual Conference, Portland, Oregon. Weissberg-Benchell, J. (February, 2017). The Patient Dilemma: I Rely on Glucose Data, But Can I Trust It? Invited lecture for a symposium sponsored by Ascensia Diabetes Care, entitled: CGM or BGM? Interactions and Implications, as part of the 10th International Conference on Advanced Technologies and Treatments for Diabetes. Paris, France. Weissberg-Benchell, J., (October, 2016). The Emotional Burden of Diabetes. Invited lecture at the 42nd annual conference of the International Association of Pediatric and Adolescent

• Diabetes. Valencia, Spain.

2015-2016

Barnard, K., Weissberg-Benchell, J., Laffel, L. (February, 2016). Workshop co-chair: Artificial Pancreas Psychosocial Measures Project. Workshop presented at the 9th International Conference on Advanced Technologies and Treatments For Diabetes. Milan, Italy. Chen, D., Hidalgo, M. A., Leibowitz, S., & Garofalo, R. (2016, June). Parental perceptions of emotional and behavioral difficulties among prepubertal gender-variant children: A qualitative study. Poster presented at the biennial meeting of the World Professional Association of Transgender Health, Amsterdam, Netherlands. Chen, D., Johnson, E., Finlayson, C., Simons, L., Gosiengfiao, Y. C., Rowell, E. E., & Woodruff, T. (2016, April). Expanding fertility preservation to gender and sex diverse

• youth. Poster presented at the annual meeting of the Society for Pediatric

Psychology, Atlanta, GA.

Chen, D., Johnson, E., Finlayson, C., Simons, L., Gosiengfiao, Y. C., Rowell, E. E., & Woodruff, T. (2015, November). Expanding fertility preservation to gender and sex diverse youth: Formation of the Pediatric/Adolescent Gender and Sex Diversity Fertility Working Group. Poster presented at the annual meeting of the Oncofertility Consortium, Chicago, IL. Chen, D., Hidalgo, M. A., Leibowitz, S., & Garofalo, R. (2016, June). Parental perceptions of emotional and behavioral difficulties among prepubertal gender-variant children: A qualitative study. Poster presented at the biennial meeting of the World Professional Association of Transgender Health, Amsterdam, Netherlands. de los Angeles CP, Williams PL, Huo Y, Alpert K, Malee K, Csernansky, JG, Yogev R, Van Dyke RB, Sowell ER, Wang L. Long term effects on the basal ganglia in youth with perinatally acquired HIV infection. Conference on Retroviruses and Opportunistic Infections 2016, February 22-25, Boston MA. Evans, M., Feldman, M. & Weissberg-Benchell, J. (2016, April). Validation of a Diabetes Self- Care Measure: Associations with Psychosocial and Metabolic Outcomes. Poster to be presented at the 2016 Society for Pediatric Psychology Annual Conference. Atlanta, GA. Evans, M., Feldman, M., Davis, L., & Weissberg-Benchell, J. (April, 2016). Validation of a Diabetes Self-Care Measure: Associations with Psychosocial and Metabolic Outcomes. Poster presented at the Society for Pediatric Psychology Annual Conference, Atlanta, GA. Evans, M., Davis, L, & Weissberg-Benchell, J. (June, 2016). Psychometric properties of the child and parent problem areas in diabetes measures. Poster presented at the 76th Annual Scientific Sessions of the American Diabetes Association. New Orleans, Louisiana. Evans, M., Weissberg-Benchell, J., Commissariat, P., Iturralde, E., Mayhew-Purcell, L., Tanenbaum, M.L., Hood, K., Johnson, N., Laffel, L. (April, 2016). Diabetes Clinical Roundtable Discussion: Behavioral Health Screening Protocols for Clinics. Roundtable discussion presented at the Society for Pediatric Psychology Annual Conference, Atlanta, Georgia. Fegan-Bohm, K., Butler, A., Anderson, B., Weissberg-Benchell, J., Titus, C., & Hilliard, M. (June, 2016). Youth at risk for type 1 diabetes (T1D) disparities: Diabetes distress and glycemic

• control. Poster presented at the 76th Annual Scientific Sessions of the American Diabetes
• Association. New Orleans, Louisiana.

Fuller, A.K., Brewer, S.K., Weingarten, C., Flores, D., Raviv, T., & Santiago, C.D. (2015). Discrepancies in Parent and Child Reports of Child Trauma Exposure and PTSD

• Symptoms. Poster presented at the International Society for Traumatic Stress

Studies 31st Annual Meeting, New Orleans, LA: November 2015. Hilliard, M., Kushner, J., Hood, K., Weissberg-Benchell, J., & Anderson, B. (June, 2015). Diabetes Resilience: Psychometric Properties of a Measure for Preadolescents with Type 1

• Diabetes. Poster presented at the 75th Annual Scientific Sessions of the American

Diabetes Association. Boston, Massachusetts. Hidalgo, M. A., Chen, D., Leibowitz, S., & Garofalo, R. (2016, June). Parallel process: Minority stress-like patterns in parents of TGNC children in the US. Poster presented at the biennial meeting of the World Professional Association of Transgender Health, Amsterdam, Netherlands. Iturralde, E., Jedraszko, A., Staudenmaier, P., Weissberg-Benchell, J., & Hood, K. (June, 2016). Diabetes distress: Explaining a link between avoidant coping and health outcomes in adolescents with T1D. Poster presented at the 76th Annual Scientific Sessions of the American Diabetes Association. New Orleans, Louisiana Johnson, E. K., Rosoklija, I., Shurba, A., Gordon, E. J., Chen, D., Finlayson, F., & Holl, J. L. (2016, September). Future fertility for individuals with differences of sex development: Parent attitudes and perspectives about decision-making. Abstract accepted for presentation at the Society for Pediatric Urology Fall Congress, Dallas, TX. Johnson, E. K., Chen, D., Gordon, E., Rosoklija, I., Holl, J., & Finlayson, C. (2016, May). Fertility-related care for gender and sex diverse individuals: A provider needs- assessment survey. Podium presentation at the annual meeting of the American Urological Association, San Diego, CA. Johnson, E. K., Finlayson, C. Chen, D., Yerkes, E., Madonna, M., Rosoklija, I., Baratz, A. Davis, Georgiann, & Cheng, E. (2016, May). Attitudes towards nomenclature among individuals with diverse “disorders of sex development”. Podium presentation at the annual meeting of the American Urological Association, San Diego, CA. Malee, K. Neuropsychological outcomes among children and adolescents with perinatally acquired HIV infection. Annual HIV research training and education conference, Bangkok, Thailand, 2015. Malee, K. Neuropsychological outcomes among children and adolescents with HIV infection. Oral presentation at Multidisciplinary NeuroAIDS Research Training to Improve HIV Outcomes in Nigeria, 2nd Annual NeuroAIDS Conference and Research Workshop, University of Ibadan, Ibadan, Nigeria, March 22-23, 2016.

Nichols SL, Chernoff MC, Kammerer B, Sirois PA, Garvie PA, Woods SP, Yildirim C, Williams PL and Malee KM. Associations of memory and executive functioning with academic and adaptive functioning among youth with perinatal HIV exposure and/or infection. International Neuropsychological Society, Boston, MA, February 3-6, 2016. Oral presentation. Powell, S.K. & Baum, K.T. (2016). A Tiered Approach to Neuropsychology Services within a Pediatric Academic Medical Center. Presented at the 2016 annual meeting of the Midwest Neuropsychology Group, Chicago, Illinois. Raviv, T. (discussant, 2015). Intervening with Elementary School Children Exposed to Trauma: Effectiveness of a School-based Intervention and Recommendations for

• Implementation. Symposium presented at the International Society for Traumatic

Stress Studies 31st Annual Meeting, New Orleans, LA: November 2015. Ros, A.M., Torres, S.A., Kolbuck, V., Suarez-Cano, G., Raviv, T., & Santiago, C.D. (2015). Parental functioning and trauma exposure: The relationship with child trauma exposure, PTSD, and treatment response. Poster presented at the International Society for Traumatic Stress Studies 31st Annual Meeting, New Orleans, LA: November 2015. Ros, A.M., Torres, S., Lewis, K.M., Raviv, T., & Santiago, C.D. (2015, February). Bounce Back Intervention for Trauma in Schools: A Pilot Replication Study. Poster presented at the annual “Niagara in Miami” conference. Miami, Florida. Santiago, C.D., Raviv, T., Ros, A.M., Fuller, A.K., Lewis, K.M., & Cicchetti, C. (2015, November). Intervening with Elementary School Students Exposed to Trauma: A Replication

• Trial. In C.D. Santiago (Chair), Intervening with Elementary School Children Exposed to

Trauma: Effectiveness of a School-based Intervention and Recommendations for

• Implementation. Symposium conducted at the International Society for Traumatic

Stress Studies 31st Annual Meeting, New Orleans, LA. Wasserman, R., Eshtehardi, S., Weissberg-Benchell, J., Anderson, B., & Hilliard, M. (June, 2016). Screening for diabetes distress and depressive symptoms in youth with type 1 diabetes (T1D). Poster presented at the 76th Annual Scientific Sessions of the American Diabetes

• Association. New Orleans, Louisiana.

Wendel, R. & Gouze, K.R. (2015). Family based assessment and treatment. In M.K. Dulcan (Ed.) Dulcan’s Textbook of Child and Adolescent Psychiatry, Second Edition, Washington, D.C.: American Psychiatric Publishing. Wendel, R., Gouze, K.R. (2014). Workshop: Family therapy treatment and training using the Integrative Module-Based Family Therapy (IMBFT) model. Annual meeting of the American Academy of Child and Adolescent Psychiatry, San Diego, CA.

Williams PL, Huo Y, de los Angeles CP, Wang SD, Uban K, Hering MM, Malee K, Nichols S, Van Dyke RB, Wang L, and Sowell ER. Brain volulmes, HIV disease severity and substance use in perinatally infected youth. Conference on Retroviruses and Opportunistic Infections 2016, February 22-25, Boston MA. Weissberg-Benchell, J. (March, 2015). Overlapping Treatment of Depression and

• Diabetes. Invited lecture for the Diabetes Diagnosis and Management Workshop offered

at the 97th Annual Endocrine Society Meeting. San Diego, California. Weissberg-Benchell, J. (March, 2015). Growing Up and Moving On, Transitioning from Pediatric to Adult Care. Invited lecture for the Type 1 Diabetes in Transition: Overcoming Obstacles to Effective Care Symposium offered at the 97th Annual Endocrine Society Meeting. San Diego, California. Weissberg-Benchell, J. (May, 2015). Personalized Diabetes Management: A Psychosocial

• Perspective. Invited Keynote Speaker for the annual medical information and training

day conference for Roche Diabetes Care. Indianapolis, Indiana. Weissberg-Benchell, J. (March, 2016). Depression and Diabetes. Invited lecture at the Endocrine Fellows meeting, 98th Annual Endocrine Society Conference, Boston, Massachusetts. Weissberg-Benchell, J. (April, 2016). Transitioning from Pediatric to Adult Care, a Developmental Perspective. Invited Key Note Address at the Annual Diabetes and Behavior Meeting at the VU University Medical Center Amsterdam. Weissberg-Benchell, J. (June, 2015). Workshop Chair: Psychosocial Aspects of the Artificial Pancreas, Key Stakeholders Perspectives. Workshop at the 75th Scientific Session of the American Diabetes Association, Boston, Massachusetts. Weissberg-Benchell, J., Rychlik, K., (June, 2016). Diabetes camp matters: Assessing the impact

• f diabetes camp on daily self-care behaviors and psychosocial well-being. Poster

presented at the 76th Annual Scientific Sessions of the American Diabetes Association. New Orleans, Louisiana.

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