How Data Supports Advocacy Using Mapping as an Advocacy Tool Hosted - - PowerPoint PPT Presentation

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How Data Supports Advocacy Using Mapping as an Advocacy Tool Hosted - - PowerPoint PPT Presentation

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How Data Supports Advocacy Using Mapping as an Advocacy Tool Hosted by Southern Womens Advocacy Response Mobilization (Project SWARM) a project of Positive Womens Network - USA Feb 10, 2015 www.pwn-usa.org Positive Women's Network-USA

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How Data Supports Advocacy Using Mapping as an Advocacy Tool

Hosted by Southern Women’s Advocacy Response Mobilization (Project SWARM) a project of Positive Women’s Network - USA

Feb 10, 2015 www.pwn-usa.org

Positive Women's Network-USA www.pwn-usa.org

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Southern Women’s Advocacy Response Mobilization

Project SWARM

  • Proje

ject ct SWARM is an advocacy action network led by women living with HIV based in the U.S. South.

  • The purpose of Project SWARM is to build skills

among women living with HIV to meaningfully participate in advancing policy and culture changes that impact women living with and vulnerable to acquiring HIV.

2 Positive Women’s Network-USA www.pwn-usa.org

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Our Distinguished Presenters

Alexandra Ricca –MPH , is a Senior Public Health Program Associate at Emory University in Atlanta, GA, where she is responsible for leading the coordination of AIDSVu, an interactive online map depicting the HIV epidemic in the United States. Sharon DeCuir, is a well recognized advocate for women, social justice, HIV and a member of PWN-USA’s Project SWARM. Sharon is the Leadership and Advocacy Coordinator at HIV/AIDS Alliance for Two Inc. (HAART), Baton Rouge, LA. In addition Sharon is PWN-USA’s Board of Directors Vice-Chair Barb Cardell, is a Boulder, Colorado-based nationally known advocate and leader. She is Vice-Chair of the People Living with HIV National Caucus , Senior member of PWN- USA-Colorado’s Regional Chapter and PWN-USA’s Board of Directors Chairperson.

Positive Women’s Network-USA www.pwn-usa.org

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Illustrating HIV/AIDS in the United States

How Data Supports Advocacy – Using Data Mapping in Advocacy

Alexandra Ricca, MPH Emory University Positive Women’s Network-USA Tuesday, February 10, 2015

Positive Women's Network-USA www.pwn-usa.org

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About AIDSVu

AIDSVu is a compilation of interactive, online maps that allows users to visually explore the HIV epidemic in the U.S. alongside critical resources such as HIV testing and treatment center locations. AIDSVu’s mission is to make HIV prevalence data widely accessible and locally relevant. AIDSVu provides users with an intuitive, visual way to connect with complex information about persons living with an HIV diagnosis at national, state and local levels.

Positive Women's Network-USA www.pwn-usa.org

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Interactive Maps

National, State, and Local Maps

  • Persons living with an HIV

diagnosis by state, county, ZIP code and census tract

  • Social determinants of health

(e.g., poverty, lack of health insurance, educational attainment)

  • HIV transmission modes
  • HIV testing and treatment center

locations

  • NIH-funded HIV Prevention,

Vaccine & Treatment Trials Sites

Positive Women's Network-USA www.pwn-usa.org

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2014 Update

Jacksonville Oakland Baton Rouge Boston San Francisco Richmond Columbia New Haven Milwaukee Bridgeport-Stamford Los Angeles Houston New Orleans Washington, DC Atlanta Detroit Chicago Philadelphia New York Miami Memphis

  • Ft. Lauderdale

Orlando West Palm Beach Jackson Dallas Newark Denver Charlotte Tampa San Juan San Diego Hampton Roads

Existing AIDSVu City New AIDSVu City in 2014

New census tract maps: Chicago Updated census tract maps: Philadelphia Washington, D.C. Neighborhood maps: Chicago Washington, D.C.

Positive Women's Network-USA www.pwn-usa.org

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Local Statistics

  • City and state demographics
  • HIV prevalence rate ratios by

race/ethnicity

  • HIV transmission modes, late diagnoses

and mortality data

  • HIV/AIDS federal grant funding and

programs

  • STD quick facts
  • Website links for city- and state-level

HIV/AIDS resources

Positive Women's Network-USA www.pwn-usa.org

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Other AIDSVu Features

HIV Testing Site Locator

  • CDC National Prevention

Information Network

  • Search by ZIP code or city & state

HIV Treatment Site Locator

  • Ryan White HIV/AIDS Medical Care

Providers

  • Search by ZIP code or city & state

Downloadable Resources

  • Slide decks with high-resolution

maps

  • Data sets

Positive Women's Network-USA www.pwn-usa.org

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AIDSVu: Supporting the National HIV/AIDS Strategy

  • Prevent new HIV infections
  • Improve linkage to prevention, care and treatment
  • Reduce HIV-related health disparities

Positive Women's Network-USA www.pwn-usa.org

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Rates of Persons Living with an HIV Diagnosis, by County, Southeastern U.S., 2010

  • Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Data Source: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. * Data are not shown to protect privacy. ** State health department requested not to release data.

Positive Women's Network-USA www.pwn-usa.org

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  • Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Data Source: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention.

Black Rates White Rates

* Data are not shown to protect privacy. ** State health department requested not to release data.

Rates of Black and White Persons Living with an HIV Diagnosis, by County, Southeastern U.S., 2010

Positive Women's Network-USA www.pwn-usa.org

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Rates of Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Atlanta, 2011

Notes: Rates include persons living with an HIV or AIDS diagnosis in Clayton, Cobb, Douglas, DeKalb, Fulton, and Gwinnett Counties at the end of 2011 and who were reported as of 12/31/2013. Data have not been adjusted for reporting delays. Data Source: Georgia Department of Public Health, Division of Health Protection, Epidemiology Program, HIV/AIDS Epidemiology Section. * Data are not shown to protect privacy because of a small number of cases and/or a small population size.

Positive Women's Network-USA www.pwn-usa.org

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Black Rates White Rates

Rates of Black & White Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Atlanta, 2011

Notes: Rates include persons living with an HIV or AIDS diagnosis in Clayton, Cobb, Douglas, DeKalb, Fulton, and Gwinnett Counties at the end of 2011 and who were reported as of 12/31/2013. Data have not been adjusted for reporting delays. Data Source: Georgia Department of Public Health, Division of Health Protection, Epidemiology Program, HIV/AIDS Epidemiology Section. * Data are not shown to protect privacy because of a small number of cases and/or a small population size.

Positive Women's Network-USA www.pwn-usa.org

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Rates of Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Columbia MSA, 2011

Notes: Rates include persons living with an HIV or AIDS diagnosis in Columbia MSA at the end of 2011 and who were reported as of 05/07/2014. Data have not been adjusted for reporting delays. Data Source:South Carolina Department of Health and Environmental Control, Bureau of Disease Control, Division of Surveillance and Technical Support. * Data are not shown to protect privacy because of a small number of cases and/or a small population size.

Positive Women's Network-USA www.pwn-usa.org

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Black Rates White Rates

Rates of Black & White Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Columbia MSA, 2011

Notes: Rates include persons living with an HIV or AIDS diagnosis in Columbia MSA at the end of 2011 and who were reported as of 05/07/2014. Data have not been adjusted for reporting delays. Data Source:South Carolina Department of Health and Environmental Control, Bureau of Disease Control, Division of Surveillance and Technical Support. * Data are not shown to protect privacy because of a small number of cases and/or a small population size.

Positive Women's Network-USA www.pwn-usa.org

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Rates of Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Jackson, 2011

Notes: Rates include persons living with an HIV or AIDS diagnosis in Jackson at the end of 2011 and who were reported as of 05/01/2014. Data have not been adjusted for reporting delays. Data Source: Mississippi Department of Health, STD/HIV Office. * Data are not shown to protect privacy because of a small number of cases and/or a small population size.

Positive Women's Network-USA www.pwn-usa.org

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Black Rates White Rates

Rates of Black & White Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Jackson, 2011

Notes: Rates include persons living with an HIV or AIDS diagnosis in Jackson at the end of 2011 and who were reported as of 05/01/2014. Data have not been adjusted for reporting delays. Data Source: Mississippi Department of Health, STD/HIV Office. * Data are not shown to protect privacy because of a small number of cases and/or a small population size.

Positive Women's Network-USA www.pwn-usa.org

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Caveats & Limitations of AIDSVu Maps

  • Data on AIDSVu may differ from data released in state and

local HIV surveillance reports.

  • Maps are inclusive of incarcerated persons and should be

interpreted with caution.

  • AIDSVu maps do not reflect undiagnosed cases.
  • Caution should be exercised when comparing maps

because the scales change when viewing data overall and by race/ethnicity, sex and age group breakdowns.

Positive Women's Network-USA www.pwn-usa.org

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Contact Us

Facebook.com/AIDSVU @AIDSVu info@aidsvu.org

www.AIDSVu.org

Positive Women's Network-USA www.pwn-usa.org

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Data/Mapping Advocacy Webinar

Sharon DeCuir Leadership and Advocacy Coordinator 02/10/2015

Positive Women's Network-USA www.pwn-usa.org

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Data/Mapping Advocacy Webinar

Welcome

Today’s Webin inar Purpose

Positive Women's Network-USA www.pwn-usa.org

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Data/Mapping Advocacy Webinar

Objectives

  • Learn ways to use Data released from your local health departments
  • Learn ways to use data to support your advocacy at AIDSWatch
  • Learn to present data in a visual form for people who may not want

to read through the pages of statistic

  • Learn ways to support each other’s advocacy regardless to where we

are located

Positive Women's Network-USA www.pwn-usa.org

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What is AIDSVu

  • AIDSVu is an interactive online map that provides the prevalence of HIV in the

United States.

  • The national, state and local map views on AIDSVu allow users to explore the

HIV epidemic combined with critical resources such as: HIV testing center locations HIV treatment center locations NIH-Funded HIV Prevention & Vaccine Trials Sites

  • The map lets users filter HIV prevalence data by:

Race/ethnicity Sex and age

  • The mapping system also shows how HIV prevalence is related to various

social determinants of health, such as: Educational attainment and poverty

Positive Women's Network-USA www.pwn-usa.org

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HIV Continuum – Another Data Resource Site

  • There are other sites that can be used to

gather information and data when putting together presentations.

  • The following is a slide from HIV Continuum
  • The HIV Continuum site provides data and information
  • n the following:

New HIV diagnoses Late HIV diagnoses Linkage to HIV care Engagement in HIV care Suppressed HIV viral load and it allows the user to filter each indicator by sex, race/ethnicity, and age

Positive Women's Network-USA www.pwn-usa.org

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How to use AIDSVu

Positive Women's Network-USA www.pwn-usa.org

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How others can use AIDSVu

To provide information on Poverty and HIV Cases Rates of Persons Living with an HIV diagnosis and the Poverty

AIDSVu (www.aidsvu.org). Emory University, Rollins School of Public Health. January 19,2015. Positive Women's Network-USA www.pwn-usa.org

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Rates of Persons Living with an HIV Diagnosis & Percent with High School Education, by Parish, Louisiana, 2010

  • Notes. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. High school education data is only inclusive of persons aged 25 and older. Data Sources: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. U.S. Census Bureau, American Community Survey 5-Year Estimates, 2006-2010.

Persons Living with an HIV Diagnosis

* Data are not shown to protect privacy. ** State health department requested not to release data. † Data not available because the data source does not publish these data for this jurisdiction.

Positive Women's Network-USA www.pwn-usa.org

Percent with a high school education

How others can use AIDSVu

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Federal Level – Congress Members

Positive Women's Network-USA www.pwn-usa.org

How AIDSVu can be used for Advocacy

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State Level – Legislative Members

Positive Women's Network-USA www.pwn-usa.org

How AIDSVu can be used for Advocacy

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Local Level:

Local Level – City Council Members

Her Platform

  • Supports Funding to Faith Based and Non-Profit Organizations that provide Human

Services to those most in need

  • Supports Small, Large, and Disadvantaged Business Development Incentives
  • Supports the Preservation of Southern University and LSU Flagship Agenda
  • Supports Funding for Arts, Culture, and Music
  • Supports the Development of Affordable Housing and Elimination of Blighted Properties
  • Supports Public Schools and School Choices
  • Supports Access and Quality Public and Private Healthcare System

Positive Women's Network-USA www.pwn-usa.org

How AIDSVu can be used for Advocacy

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AIDSVu Action

  • Clinical Settings – Treatment and Care

Improvements

  • Medicaid Expansion Projects
  • Information for uninsured clients

Positive Women's Network-USA www.pwn-usa.org

AIDSVu Action

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Questions?

Positive Women's Network-USA www.pwn-usa.org

Questions?

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Contact Information

CONTACT INFORMAION Sharon S. DeCuir Vice Chair, PWN-USA Board of Directors Leadership and Advocacy Coordinator 4550 North Blvd 3250 Baton Rouge, LA 70806 225-927-1269 ex 1758

Sharon Predi Ladi Predi_Ladi @prediladi

Positive Women's Network-USA www.pwn-usa.org

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Barb Cardell

How I use AIDSVu.org in community advocacy

Colorado Coalition for HIV Care and Prevention- Chair PWN USA Colorado- Co chair

Positive Women's Network-USA www.pwn-usa.org

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How to use AID IDSVu.org in in community advocacy

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  • 1. State level data for general public
  • 2. State, county and city level to understand Health

Department statistics

  • 3. For outreach and advocacy with elected officials

Positive Women's Network-USA www.pwn-usa.org

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1) State level data for general public

37 Positive Women's Network-USA www.pwn-usa.org

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www.AIDSVu.org

Rates of Persons Living with an HIV Diagnosis, by County, Wyoming, 2010

  • Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Data Source: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. * Data are not shown to protect privacy. ** State health department requested not to release data.

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39 Positive Women's Network-USA www.pwn-usa.org

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40 Positive Women's Network-USA www.pwn-usa.org

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41 Positive Women's Network-USA www.pwn-usa.org

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2) State, county and city level data to understand Health Department statistics

42 Positive Women's Network-USA www.pwn-usa.org

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Normally data looks like this…

43 Positive Women's Network-USA www.pwn-usa.org

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44

Versus this…

Positive Women's Network-USA www.pwn-usa.org

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www.AIDSVu.org

Rates of Persons Living with an HIV Diagnosis, by County, Colorado, 2010

  • Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Data Source: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. * Data are not shown to protect privacy. ** State health department requested not to release data.

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46

Or this…

Positive Women's Network-USA www.pwn-usa.org

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Rates of Persons Living with an HIV or AIDS Diagnosis, by ZIP Code, Denver Metro, 2011

Notes: Rates include persons living with an HIV or AIDS diagnosis in Denver, Arapahoe, Jefferson, Adams and Douglas Counties at the end of 2011 and who were reported as of 03/31/2014. Data have not been adjusted for reporting delays. Data Source Colorado Department of Public Health and Environment, Disease Control and Environmental Epidemiology. * Data are not shown to protect privacy because of a small number of cases and/or a small population size.

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48

And this…

Positive Women's Network-USA www.pwn-usa.org

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www.AIDSVu.org

Rates of Women Living with an HIV Diagnosis, by County, Colorado, 2010

  • Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Data Source: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. * Data are not shown to protect privacy. ** State health department requested not to release data.

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50

And especially this…

Positive Women's Network-USA www.pwn-usa.org

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And especially this….

51 Positive Women's Network-USA www.pwn-usa.org

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52

Often we track who uses services, but how far do they travel and what are their options?

Positive Women's Network-USA www.pwn-usa.org

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www.AIDSVu.org

Rates of Persons Living with an HIV Diagnosis & Poverty Rates, by County, Colorado, 2010

  • Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Data Sources: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. U.S. Census Bureau, Small Area Income and Poverty Estimates.

Persons Living with an HIV Diagnosis Poverty Rates

* Data are not shown to protect privacy. ** State health department requested not to release data. † Data not available because the data source does not publish these data for this jurisdiction.

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3) Outreach and advocacy to elected officials

54 Positive Women's Network-USA www.pwn-usa.org

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55

HIV in his District looks like this…

Positive Women's Network-USA www.pwn-usa.org

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www.AIDSVu.org

Rates of Persons Living with an HIV Diagnosis, by County, Colorado, 2010

  • Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Data Source: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. * Data are not shown to protect privacy. ** State health department requested not to release data.

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www.AIDSVu.org

Rates of Persons Living with an HIV Diagnosis & Percent of Population without Health Insurance, by County, Colorado, 2010

  • Notes. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Health insurance data is only inclusive of persons aged 65 and younger. Data Sources: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. U.S. Census Bureau, Small Area Health Insurance Estimates.

Persons Living with an HIV Diagnosis Population without Health Insurance

* Data are not shown to protect privacy. ** State health department requested not to release data. † Data not available because the data source does not publish these data for this jurisdiction.

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www.AIDSVu.org

Rates of Persons Living with an HIV Diagnosis & Poverty Rates, by County, Colorado, 2010

  • Note. Data include persons with a diagnosis of HIV infection, regardless of the stage of disease at diagnosis, and have been statistically adjusted to

account for reporting delays and missing risk-factor information, but not for incomplete reporting. Data Sources: Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention. U.S. Census Bureau, Small Area Income and Poverty Estimates.

Persons Living with an HIV Diagnosis Poverty Rates

* Data are not shown to protect privacy. ** State health department requested not to release data. † Data not available because the data source does not publish these data for this jurisdiction.

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59 Positive Women's Network-USA www.pwn-usa.org

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  • Questions ? Comments?
  • Feel free to contact me
  • Barb Cardell

barb@barbcardell.com (303) 946-2529

  • For more information
  • GIPA Good Practice Guide in English, Spanish and French by the International HIV/AIDS Alliance and Global

Network of people Living with HIV/AIDS (GNP+) www.gnpplus.net

  • Opportunities and Mechanisms for involving PLHIV in the NHAS by the US PLHIV Caucus

www.hivcaucus.org And of course…..

  • Source: AIDSVu (www.aidsvu.org). Emory University, Rollins

School of Public Health. [12/2013 to 1/2015.]

60 Positive Women's Network-USA www.pwn-usa.org

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Thank you for your participation. You can help us by completing the survey.

Today’s presenters

  • Alexandra Ricca

aricca@emory.edu

  • Sharon Decuir

s.decuir@haartinc.org

  • Barb Cardell

barb@barbcardell.com PWN-USA Regional Organizing Coordinator Waheedah Shabazz-El waheedah.work@gmail.com (267) 575-3175