Survivors(of(Cancer(in( Adolescence(and(Young( - - PowerPoint PPT Presentation

Survivors(of(Cancer(in( Adolescence(and(Young( Adulthood:(A(Canadian(Strategy(

Dr.(Krista(Wilkins,(University(of(New(Brunswick( Fredericton,(New(Brunswick,(CANADA(

15E29(year(olds(( 2,075(new(cases(per(year( 2%(of(all(invasive(cancers(( 326(deaths(per(year( 16,000(potential(years(of(life(lost(due(to(cancer( 16,000(potential(years(of(life(lost(due(to(cancer(

Adults((AYA)(with(Cancer?( Adults((AYA)(with(Cancer?(

( (Survivor,((March,(2010,(CPAC(AYA(workshop(

Oeffinger,(Hudson,(&(Landier,(2009)((

(

,(2009)((

(

(Canadian(Cancer(Society’s(Steering(Committee,(2009)((

(

Survival(Rates(

1Eyear,(3Eyear(and(5Eyear(observed(survival(proportions( were(93%,(86%(and(83%,(respectively( 5Eyear(survival(among(females(was(similar(to,(or(higher,( than(among(males( 5Eyear(survival(similar(across(age(groups( Slow(gains(in(5Eyear(survival(rates( (

~1/640(individuals(between(the(ages(of(20(and(39( years(is(a(survivor(of(childhood(cancer(( ~(2/3(will(have(1(adverse(sequelae(from(the(treatment( for(their(disease( (

Survivors(of(Cancer(in(AYA(

(Canadian(Cancer(Society’s(Steering(Committee,(2009;(Oeffinger,(Hudson,(&(Landier,(2009)(

“It(totally(blindsided(me…It’s(the(last(thing(you(expect(when(you’re(25…I( felt(cheated…I(watched(friends(getting(married,(going(on(trips,(advancing( in(their(careers(–(and(I(was(in(a(stalemate.”((

Shawn(Sajkowski,(age(25,(nonEHodgkin(lymphoma( (

• Different(spectrum(of(cancers(
• Biology(of(cancers(may(actually(be(different(
• Not(well(served(by(the(traditional(dichotomy(of(the(

health(care(system((pediatric(vs.(adult(cancer(centres)(

Lack(of(dedicated(resources(and(staff((

• Very(few(collaborative(activities(

Lack(of(dedicated(resources(and(staff(( Very(few(collaborative(activities(

What(are(the(Issues?(

,(2009;(Ramphal Landier,(2009;(Ramphal(et(al.,(2011)(

Canadian(Task(Force(on(Adolescents( and(Young(Adults(with(Cancer(

• utcomes(and(quality(of(life(of(AYA(with(cancer(

Eliminate(current(disparities(of(care(for(AYA(during( and(after(cancer(treatment(( 2. Ensure(AYA(with(cancer(have(prompt(and(equitable( access(to(best(care( 3. Establish(and(support(research(to(optimize(health(

• utcomes(and(quality(of(life(of(AYA(with(cancer(

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• pen the image, or the image

“Implementation(of(lifeElong(monitoring(and(followE up(of(survivors(of(cancer(in(childhood,(adolescence,( and(young(adulthood(will(provide(economic(and(other( societal(benefits(and(help(mitigate(lateE(or(longEterm( treatment(effects.”( (

Task(Force’s(Recommendations(for( Provision(of(Survivorship(Care(

(Fernandez,(et(al.(2011)(

Discussions(and(education(about(survivorship(during(active(treatment( Transition(record((

Tumor,(treatment,(medical(and(preventive(healthcare,(rehab(opportunities( Easily(accessible( Updated(( Part(of(healthcare(delivery(responsibility((

Quality,(evidenceEbased(longEterm(followEup(guidelines((

RiskEstratified( Patient(needs(and(preferences( Integrated(into(local(healthcare(delivery(system(

Quality,(evidenceEbased(rehab(services(

For(range(of(rehab(needs((physical,(psychosocial,(occupational,(educational)(

Priority(Areas(for(Intervention(

(Fernandez,(et(al.(2011)(

Going(Forward(with(Survivorship( Recommendations(

(The(Canadian(Task(Force(on(Adolescents(and(Young(Adults(with(Cancer,(2012)(

Year(1! Year(2! Year(3! Year(4! Year(5! Identify(leaders( and(champions( (( Constitute(a( Regional(Action( Partnership( (RAP)( (( Develop(a(local( action(plan(with( clear(objectives( and(priorities! Obtain(buy(in( from(all( stakeholders,( including( government(and( policy(makers( (may(include( funding( approval)! Phased(roll(out( and(data( gathering! Evaluation(and( refinement( (! AgeEappropriate( care(is(delivered( and/or(supported( by(multiE disciplinary(teams( (( (!

Introduction(of(multiEdisciplinary(teams(who( would(be(responsible(for(delivering(active(and( followEup(AYA(care(

( (

(The(Canadian(Task(Force(on(Adolescents(and(Young(Adults(with(Cancer,(2012)(

( ( Incorporate(AYAEspecific(tools(into( AYA(care( ( (

Year(1! Year(2! Year(3! Year(4! Year(5! Survey( existing(tools! Identify(gaps( with(existing( tools( (( Develop(and( test(new(/ improved( tools! Disseminate( and(evaluate( tools! Roll(out(tools( and( integrate( into(practice! All(AYAs(have( access(to( validated(tools( that(improve( and(facilitate( management(

• f(their(cancer(

journey!

(The(Canadian(Task(Force(on(Adolescents(and(Young(Adults(with(Cancer,(2012)(

References(

Adolescents(and(Young(Adults((Ages(15E29(Years)(.( and(young(adultEaged(cancer(patients(and(survivors.( Journal(of(Adolescent(and(Young(Adult(Oncology,(1,(53E59.( ,(W.((2009).( Clinics(in(Office(Practice,(36,(743E780.(doi:10.1016/j.pop. 2009.07.007( Ramphal ,(R.,(et(al.((2011).(Practices(and(resources(devoted( to(the(care(of(adolescents(and(young(adults(with(cancer( in(Canada:(A(survey(of(pediatric(and(adult(cancer( treatment(centers.(Journal(of(Adolescent(and(Young( with(Cancer((2012).((Framework(for(Action(on( Recommendations(for(Care(of(AYA(with(Cancer. (

(2009.07.007(

Ramphal,(R.,(et(al.((2011).(Practices(and(resources(devoted( to(the(care(of(adolescents(and(young(adults(with(cancer( in(Canada:(A(survey(of(pediatric(and(adult(cancer( treatment(centers.(Journal(of(Adolescent(and(Young( Adult(Oncology,(1,(140E144.(doi:10.1089/jayao.2011.0023( The(Canadian(Task(Force(on(Adolescents(and(Young(Adults( with(Cancer((2012).((Framework(for(Action(on( Recommendations(for(Care(of(AYA(with(Cancer.(

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