SLIDE 1
MANITOBA PRIMARY CARE RESEARCH NETWORK (MAPCREN)
THE CANADIAN PRIMARY CARE SENTINEL SURVEILLANCE NETWORK
SLIDE 2 How can you get involved? What is CPCSSN?
- CPCSSN - Canadian Primary Care Sentinel Surveillance Network
- The first pan-Canadian primary care based
multi-disease surveillance system
- Collaboration of Clinicians and Researchers
- A network of networks
- securely collecting health information from Electronic
Medical Records (EMRs) in the offices of primary care providers since 2008.
SLIDE 3
How can you get involved? What is CPCSSN?
11 Primary-Care Based Research Networks across Canada 7 Provinces, 1 Territory 11 distinct EMR systems
MaPCReN is Manitoba’s network in the CPCSSN
SLIDE 4 How can you get involved?
Sites Sentinels Patients CPCSSN 217 1,189 1,500,000+ MaPCReN 48 266 288,000+
As of Nov. 21, 2017
- Each local CPCSSN network recruits local primary care providers
who consent to extraction of data from their EMRs.
- MaPCReN (Manitoba Primary Care Research Network)
- currently extracting EMR data from practices utilizing Accuro
and JonokeMed
What is CPCSSN?
SLIDE 5 How can you get involved? Purpose of CPCSSN
A research ready data repository for primary care investigators
- Collect and maintain national epidemiological
surveillance data to improve outcomes in health care
- Improve management of conditions; best possible
patient care
- Develop reports for providers
- Platform for multi-level research
SLIDE 6 How can you get involved? Initial Focus
Initial focus:
- 5 chronic health conditions
- Hypertension, Osteoarthritis, Diabetes, COPD,
Depression
- 3 neurologic conditions
- Dementia, Epilepsy, Parkinson’s Disease
Any condition with indicators captured in a primary care EMR can be studied
SLIDE 7 How can you get involved? Process
DE-IDENTIFICATION
- Patient records de-identified – assigned unique CPCSSN
identifier.
- Key file generated
- permits linkage of patient’s EMR specific identifier with
CPCSSN-generated unique identifier.
SLIDE 8 How can you get involved?
Assigning of Unique CPCSSN Identifiers – Example:
Provider Patients: Jane Doe
Provider #897 Best Care Clinic
CPCSSN- generated Unique Identifier 33425 John Smith
Patient # 459728 Best Care Clinic
CPCSSN- generated Unique Identifier 189756
Process
SLIDE 9 How can you get involved?
CPCSSN Data Extraction occurs quarterly
- Data upload generated by MaPCReN Data Manager /
your EMR Provider representative
- Data uploaded from EMR to secure regional CPCSSN server
within CPCSSN server (no other CPCSSN personnel have access)
Process
SLIDE 10 How can you get involved?
Site 1 EMR1 Site 2 EMR1 Site 3 EMR2 Site 4 EMR2 Network 1 Site 1 EMR3 Site 2 EMR 3 Site 3 EMR4 Site 4 EMR4 Network 2 CPCSSN Repository Site 1 EMR3 Site 2 EMR2 Site 3 EMR5 Site 4 EMR5 Network 3
Data Storage
Process
SLIDE 11 How can you get involved? Repository Data
- Provider profile
- Patient socio-demographics
- Disease / health condition
- Encounters
- Risk factors
- Examinations
- Medications
- Laboratory results
- Referrals
- Procedures
SLIDE 12 How can you get involved? Access
Who has access to CPCSSN data? For what purpose?
- Those working with the central repository
- Internal CPCSSN personnel – epidemiologists
- Researchers who apply for access to CPCSSN data
– Only data fields relevant to specific study
All patient data is de-identified
SLIDE 13
How can you get involved? Ethics, Privacy, and Security
CPCSSN - national ethics approval Health Canada MaPCReN - local ethics approval University of Manitoba WRHA Southern RHA Northern RHA
SLIDE 14 How can you get involved? Ethics, Privacy, and Security
- CPCSSN privacy committee - oversees privacy and confidentiality
policies and their maintenance
- Patient consent
- not individually obtained; patients informed of opportunity to
- pt out and have their data excluded.
- consistent with PHIA legislation in MB.
SLIDE 15 How can you get involved? Why participate?
- Your voluntary participation will significantly enhance our
capacity to do local primary care research
- Allows for national primary care research
- Enables us to provide you with practice profile reports to
help you understand your practice and to compare with
SLIDE 16 How can you get involved? Value proposition – sample report
Reports to You:
- As part of the quarterly data processing CPCSSN will
generate sentinel feedback reports.
- Reports contain aggregated data for each sentinel provider
– patient demographic makeup – disease prevalence and indicators
- Compare disease rates for patients in practice to those of
clinic / region / other CPCSSN sites across the country
SLIDE 17
How can you get involved? Feedback Reports (sample)
SLIDE 18
How can you get involved? Feedback Reports (sample)
SLIDE 19
How can you get involved? Feedback Reports (sample)
SLIDE 20
How can you get involved? Feedback Reports (sample)
SLIDE 21
How can you get involved? Feedback Reports (sample)
SLIDE 22
How can you get involved? Feedback Reports (sample)
SLIDE 23 How can you get involved? Previous Research
- Assessing the Quality of Oral Anticoagulant Therapy in
Canadian Primary Care Practices: A retrospective study using the Canadian Primary Care Sentinel Surveillance Network (CPCSSN)
- Assessment of Outpatient Antimicrobial Prescribing in
Manitoba Using a Primary Care Sentinel Surveillance System
SLIDE 24
How can you get involved? Sentinel Participation
Meet MaPCReN Network Director and/or Research Staff. Each provider completes and signs the Research Participant Information and Consent forms. Complete the Clinic Data Sharing Agreement and Clinic Profile Form. Site Manager to collect above forms from participating providers at your clinic and return to MaPCReN.
SLIDE 25 How can you get involved? Contact Us
- Alex Singer, Network Director
asinger@sbgh.mb.ca
- William Peeler, Data Manager
William.Peeler@umanitoba.ca
- Leanne Kosowan, Research Coordinator
Leanne.Kosowan@umanitoba.ca
- Alyzia Horsfall, Research Assistant
Alyzia.horsfall@umanitoba.ca Manitoba Primary Care Research Network (MaPCReN) D009 – 780 Bannatyne Avenue Winnipeg MB R3T 2N2
SLIDE 26
How can you get involved?
SLIDE 27 Thanks to all Funders, Stakeholders, Partners AND Sentinel Clinicians!
Cette publication a été réalisée grâce au financement de l'Agence de la santé publique du Canada. Les opinions exprimées ici ne reflètent pas nécessairement celles de l'Agence de la santé publique du Canada. Funding for this publication was provided by the Public Health Agency of Canada The views expressed herein do not necessarily represent the views of the Public Health Agency of Canada.
