UCLH Members Meet Pituitary disorders UCLH Department of Diabetes - - PowerPoint PPT Presentation

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UCLH Members Meet Pituitary disorders UCLH Department of Diabetes - - PowerPoint PPT Presentation

UCLH Members Meet Pituitary disorders UCLH Department of Diabetes & Endocrinology 15 th November 2016 The pituitary journey- behind the scenes of a multidisciplinary team Dr Umaira Aziz, SpR in Endocrinology Dr Umasuthan


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UCLH Members Meet

Pituitary disorders UCLH Department of Diabetes & Endocrinology 15th November 2016

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The pituitary journey- behind the scenes of a multidisciplinary team

  • Dr Umaira Aziz, SpR in Endocrinology
  • Dr Umasuthan Srirangalingam, Consultant Endocrinologist
  • Miss Joan Grieve, Consultant Neurosurgeon
  • Inma Serrano, Clinical pituitary nurse Specialist
  • Afizah Nobeebux, Specialist nurse in Endocrinology
  • Dr Stephanie Baldeweg, Consultant Endocrinologist
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Program

An introduction into the healthy pituitary gland and its hormones The pituitary gland: what can go wrong? Pituitary surgery The role of the specialist pituitary nurse Lifestyle and pituitary disease The pituitary journey- how to navigate your condition Questions and Answers

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A pituitary experience: can we make it more positive ?

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Ingredients

  • Patient
  • Medical/ surgical team
  • Hospital
  • Treatment(s)
  • Future
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The Patient

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The patient’s journey

  • Long
  • Complicated
  • Not pleasant
  • Not of my own choosing
  • Uncertainties all along
  • ********
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The patient’s journey starts

  • Dentist
  • GP
  • Orthopaedic surgeon
  • Psychiatrist
  • Optician/ ophthalmologist
  • Friends
  • A stranger on the bus/ train/golf course
  • Casualty/ ER
  • Internet

The Patient

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Patient meets the team

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The team

  • Biochemist
  • Pathologist
  • Specialist Nurse
  • Consultant Endocrinologist
  • Staff Nurses
  • Junior doctors
  • Porters
  • Theatre staff
  • Receptionist
  • Consultant Neurosurgeon
  • Radiologist
  • Ophthalmologist
  • Radiotherapist
  • Pharmacist
  • Secretary
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The team

  • Biochemist
  • Specialist Nurse
  • Consultant Endocrinologist
  • Consultant Neurosurgeon
  • Staff Nurses
  • Junior doctors
  • Theatre staff
  • Receptionist
  • Pathologist
  • Radiologist
  • Ophthalmologist
  • Radiotherapist
  • Pharmacist
  • Secretary
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The Patient The Team

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Tip No 1: Join the team

The Team

A pituitary experience: can we make it more positive?

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A pituitary experience: can we make it more positive?

Tip No 2: Check who is who

  • How experienced are they?
  • Are they familiar with your notes/ story ?
  • Who is making the decisions?
  • Will they discuss with the consultant ?
  • Can you meet the Consultant?
  • How will you hear of the outcome?

The Team

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The endocrinologist’s journey

Medical students 5-6 years Pre-registration House Officers 1 year Senior House Officers (SHO) 2-4 years Specialist Registrars (SpR)

Diabetes, bone disease, fertility, pituitary, oncology, thyroid, pregnancy, general internal medicine

5-8 years Consultants Total training 13-19 years Experience as consultant 1-30 years

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The place / the visit

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  • Specialised centres in the UK
  • 1- 2 dedicated surgeons
  • Joint pituitary clinic with surgeons and

endocrinologists

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A pituitary experience: can we make it more positive?

Tip No 3: Check the place out

  • Is this a specialist centre?
  • Is your surgeon doing most of the

pituitary operations there?

  • Is there a joint clinic with

endocrinologists & neurosurgeons?

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A pituitary experience: can we make it more positive?

Tip No 4: Invite your GP into the team

The Team

GP

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A pituitary experience: can we make it more positive?

Tip No 5: Get the most out of your clinic visit

  • A friend or relative (Introduce them)
  • Copies of letters/ scans (This clinic, Other clinics, Names of doctors)
  • List of medication
  • Prepare list of questions
  • Communicate how you feel
  • How to communicate in the future

The Team

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A pituitary experience: can we make it more positive?

Tip No 6: Ask all you want to know about surgery!

  • What is your cure rate?
  • How likely are you to cure me?
  • What are the possible complications and how likely are they?
  • How long will I be in hospital for?
  • Will I need other treatments afterwards?
  • Is there any written information I can take home?
  • What happens next?

The Team

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A pituitary experience: can we make it more positive?

Tip No 7: Ask all you want to know about drugs!

  • What are they for?
  • How effective are they?
  • What are the possible side effects and how likely are they?
  • How long will I be taking these?
  • Is there any written information I can take home?
  • What happens next?

The Team

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A pituitary experience: can we make it more positive?

Tip No 8: Ask all you want to know about radiotherapy!

  • Why do I need this?
  • How effective is radiotherapy?
  • What are the possible side effects and how likely are they?
  • Where and how will I be treated?
  • Is there any written information I can take home?
  • What happens next?

The Team

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The state of pituitary care today

  • Complex
  • Multidisciplinary
  • Patient -centred
  • Consultant- led
  • Cost-driven
  • Communication is

central

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A pituitary experience: can we make it more positive?

  • Join the team
  • Check who is who
  • Make your GP an ally
  • Get the most out of your

clinic visit

  • Ask all you want to know

about your treatment

  • Communicate