UCLH Members Meet Pituitary disorders UCLH Department of Diabetes - - PowerPoint PPT Presentation
UCLH Members Meet Pituitary disorders UCLH Department of Diabetes - - PowerPoint PPT Presentation
UCLH Members Meet Pituitary disorders UCLH Department of Diabetes & Endocrinology 15 th November 2016 The pituitary journey- behind the scenes of a multidisciplinary team Dr Umaira Aziz, SpR in Endocrinology Dr Umasuthan
The pituitary journey- behind the scenes of a multidisciplinary team
- Dr Umaira Aziz, SpR in Endocrinology
- Dr Umasuthan Srirangalingam, Consultant Endocrinologist
- Miss Joan Grieve, Consultant Neurosurgeon
- Inma Serrano, Clinical pituitary nurse Specialist
- Afizah Nobeebux, Specialist nurse in Endocrinology
- Dr Stephanie Baldeweg, Consultant Endocrinologist
Program
An introduction into the healthy pituitary gland and its hormones The pituitary gland: what can go wrong? Pituitary surgery The role of the specialist pituitary nurse Lifestyle and pituitary disease The pituitary journey- how to navigate your condition Questions and Answers
A pituitary experience: can we make it more positive ?
Ingredients
- Patient
- Medical/ surgical team
- Hospital
- Treatment(s)
- Future
The Patient
The patient’s journey
- Long
- Complicated
- Not pleasant
- Not of my own choosing
- Uncertainties all along
- ********
The patient’s journey starts
- Dentist
- GP
- Orthopaedic surgeon
- Psychiatrist
- Optician/ ophthalmologist
- Friends
- A stranger on the bus/ train/golf course
- Casualty/ ER
- Internet
The Patient
Patient meets the team
The team
- Biochemist
- Pathologist
- Specialist Nurse
- Consultant Endocrinologist
- Staff Nurses
- Junior doctors
- Porters
- Theatre staff
- Receptionist
- Consultant Neurosurgeon
- Radiologist
- Ophthalmologist
- Radiotherapist
- Pharmacist
- Secretary
The team
- Biochemist
- Specialist Nurse
- Consultant Endocrinologist
- Consultant Neurosurgeon
- Staff Nurses
- Junior doctors
- Theatre staff
- Receptionist
- Pathologist
- Radiologist
- Ophthalmologist
- Radiotherapist
- Pharmacist
- Secretary
The Patient The Team
Tip No 1: Join the team
The Team
A pituitary experience: can we make it more positive?
A pituitary experience: can we make it more positive?
Tip No 2: Check who is who
- How experienced are they?
- Are they familiar with your notes/ story ?
- Who is making the decisions?
- Will they discuss with the consultant ?
- Can you meet the Consultant?
- How will you hear of the outcome?
The Team
The endocrinologist’s journey
Medical students 5-6 years Pre-registration House Officers 1 year Senior House Officers (SHO) 2-4 years Specialist Registrars (SpR)
Diabetes, bone disease, fertility, pituitary, oncology, thyroid, pregnancy, general internal medicine
5-8 years Consultants Total training 13-19 years Experience as consultant 1-30 years
The place / the visit
- Specialised centres in the UK
- 1- 2 dedicated surgeons
- Joint pituitary clinic with surgeons and
endocrinologists
A pituitary experience: can we make it more positive?
Tip No 3: Check the place out
- Is this a specialist centre?
- Is your surgeon doing most of the
pituitary operations there?
- Is there a joint clinic with
endocrinologists & neurosurgeons?
A pituitary experience: can we make it more positive?
Tip No 4: Invite your GP into the team
The Team
GP
A pituitary experience: can we make it more positive?
Tip No 5: Get the most out of your clinic visit
- A friend or relative (Introduce them)
- Copies of letters/ scans (This clinic, Other clinics, Names of doctors)
- List of medication
- Prepare list of questions
- Communicate how you feel
- How to communicate in the future
The Team
A pituitary experience: can we make it more positive?
Tip No 6: Ask all you want to know about surgery!
- What is your cure rate?
- How likely are you to cure me?
- What are the possible complications and how likely are they?
- How long will I be in hospital for?
- Will I need other treatments afterwards?
- Is there any written information I can take home?
- What happens next?
The Team
A pituitary experience: can we make it more positive?
Tip No 7: Ask all you want to know about drugs!
- What are they for?
- How effective are they?
- What are the possible side effects and how likely are they?
- How long will I be taking these?
- Is there any written information I can take home?
- What happens next?
The Team
A pituitary experience: can we make it more positive?
Tip No 8: Ask all you want to know about radiotherapy!
- Why do I need this?
- How effective is radiotherapy?
- What are the possible side effects and how likely are they?
- Where and how will I be treated?
- Is there any written information I can take home?
- What happens next?
The Team
The state of pituitary care today
- Complex
- Multidisciplinary
- Patient -centred
- Consultant- led
- Cost-driven
- Communication is
central
A pituitary experience: can we make it more positive?
- Join the team
- Check who is who
- Make your GP an ally
- Get the most out of your
clinic visit
- Ask all you want to know
about your treatment
- Communicate