Welcome to Sensitivi-tea What matters most during diagnosis - - PowerPoint PPT Presentation

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Welcome to Sensitivi-tea What matters most during diagnosis - - PowerPoint PPT Presentation

Welcome to Sensitivi-tea What matters most during diagnosis www.youngdementiauk.org/webinars What people said about receiving a diagnosis Being Active Meeting in Convenience involved listening person Considerate Time to ask Calm


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Welcome to Sensitivi-tea

What matters most during diagnosis

www.youngdementiauk.org/webinars

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What people said about receiving a diagnosis…

Convenience Being involved Active listening Meeting in person Considerate use of language Home visits Time to ask questions Calm approach Private discussions Reaction to diagnosis Private location

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Convenience Being involved Active listening Meeting in person Considerate use of language Home visits Time to ask questions Calm approach Private discussions Reaction to diagnosis Private location

What people said about receiving a diagnosis…

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‘Believing me that something was wrong and not saying it was all down to stress’ ‘The process could have been improved if it could have been diagnosed quicker and again if they listened to us as a family’

  • Quotes from people with

young onset dementia

Active Listening

The clinicians should listen to the person with dementia and their family as a whole

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Convenience Being involved Active listening Meeting in person Considerate use of language Home visits Time to ask questions Calm approach Private discussions Reaction to diagnosis Private location

What people said about receiving a diagnosis…

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ut a diagnosis.

‘The diagnosis was handled sympathetically and very re-assuring’ ‘Being tactful and careful when discussing how quickly the person's dementia may deteriorate’

  • Quotes from family supporters

Considerate use

  • f language

Clinicians should be compassionate, empathic and respectful during the assessment and particularly sensitive when providing information

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GP recognition

  • f young onset

dementia Appointment notice period Contact family supporters as well Single point of contact Avoid repetition Using lay terms Follow-up letter Quick referral Referrals to specialist services Multi- disciplinary team Enhanced awareness of young onset Understanding all forms of dementia Explanation of assessments Improved access to clinics Pleasant MRI experience Results issued more quickly Diagnosis explained Shorter time to diagnosis

What people told us about services…

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GP recognition

  • f young onset

dementia Appointment notice period Contact family supporters as well Single point of contact Avoid repetition Using lay terms Follow-up letter Quick referral Referrals to specialist services Multi- disciplinary team Enhanced awareness of young onset Understanding all forms of dementia Explanation of assessments Improved access to clinics Pleasant MRI experience Results issued more quickly Diagnosis explained Shorter time to diagnosis

What people told us about services…

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Referrals should ideally be made to specialist YOD clinicians and services

‘For referrals to be made to specialist units. Better awareness and training in Mental Health Trusts

  • n the issues faced by younger

people with dementia’

  • Family supporter

Referrals to specialist services

Referrals should ideally be made to specialist young onset dementia clinicians and services

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GP recognition

  • f young onset

dementia Appointment notice period Contact family supporters as well Single point of contact Avoid repetition Using lay terms Follow-up letter Quick referral Referrals to specialist services Multi- disciplinary team Enhanced awareness of young onset Understanding all forms of dementia Explanation of assessments Improved access to clinics Pleasant MRI experience Results issued more quickly Diagnosis explained Shorter time to diagnosis

What people told us about services…

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Providing the person with dementia and their supporters with a letter which details the diagnosis.

‘Delivering the diagnosis face-to-face, and providing a subsequent letter’

  • Person living with dementia

‘…the diagnosis has difficult terminology but this was explained and having the follow up letter I was able to research and look up the reference’

  • Family supporter

Follow-up letter

Providing the person with dementia and their supporters with a letter which details the diagnosis

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If you are living with young onset dementia

  • r are working in a memory service

How would this information that we have gathered about people’s experiences be useful for you?

Question for the audience…

Taking things forward…

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Thank you for joining us

www.youngdementiauk.org/webinars