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IAL ME E T ING Northe rn Ne c k He a lth Colla bora tive

“Northe rn Ne c k Pa tie nt Advoc a te s a nd Provide rs for PCOR- CE R” F rida y, Ma rc h 30, 2018 11:00 a .m. – 1:00 p.m. Ra ppa ha nnoc k Churc h of Christ

4268 Ric hmo nd Rd. Wa rsa w, VA 22572

T his me e ting is funde d thro ugh a Patie nt Ce nte re d Outc o me s Re se arc h I nstitute (PCORI ) E ngage me nt Award Co ntrac t # 7232 – RE E SSI . T he c o nte nt do e s no t ne c e ssarily re pre se nt the vie ws o f the Patie nt Ce nte re d Outc o me s Re se a rc h I nstitute (PCORI ), its Bo a rd o f Go ve rno rs o r Me tho do lo g y Co mmitte e .

HE SE NT F ORT H HIS WORD AND HE AL E D T HE M.

• PS. 17:20 NIV

• ME

E T I NG GOAL S:

• 1. T
• intro duc e to the g o a ls, o b je c tive s a nd

a c tivitie s o f the 2-ye a r PCORI pro je c t.

• 2. T
• intro duc e the va lue o f PCOR-CE

R. AGE NDA

• Re ve re nd Do ro thy Jo hnso n

Ope ning Pra ye r

L a ve rne Mo rro w Ca rte r, Ph.D., MPH

We lc ome a nd Introduc tions

• WHAT

IS PCORI? (H. Bla c kwe ll) An inde pe nde nt no npro fit, no ng o ve rnme nta l

• rg a niza tio n lo c a te d in Wa shing to n, DC, wa s a utho rize d

b y Co ng re ss in 2010 unde r the Affo rda b le Ca re Ac t. PCORI wa s e sta b lishe d to fund studie s a nd c o lle c t info rma tio n will he lp pa tie nts a nd tho se who c a re fo r the m ma ke g o o d de c isio ns a b o ut the he a lthc a re c ho ic e s the y fa c e e ve ry da y. Be twe e n 2010 a nd 2018, PCORI funde d mo re tha n $2 b illio n do lla rs in re se a rc h pro je c ts to impro ve c a re a nd tre a tme nt fo r pa tie nts in the U.S. T he y ha ve five prio ritie s: Asse ssing b e st ways to pre ve nt, dia g no se a nd tre a t dise ase s I mpro ving he a lthc are syste ms Ge tting the be st prac tic e s to patie nts and the ir pro vide rs Addre ssing dispa ritie s in dise a se pre ve ntio n, dia g no sis and tre atme nt ac ro ss patie nt po pulatio ns (e .g ., diffe re nc e s b y rac e , g e nde r, lo c atio n, ag e ) Building infra struc ture s in the U.S. tha t suppo rt c o nduc ting g o o d patie nt-c e nte re d o utc o me s re se arc h

PROJE CT OVE RVI E W – ABST RACT (1)

Rura l Afric a n Ame ric a ns a re in dua l je o pa rdy, sa ddle d with the b urde ns o f Rura lity a nd Ra c e RE E SSI ’ s so lutio n a nd pro po sa l to PCORI : RE E SSI will b uild a re g io na l le a rning c o lla b o ra tive o f pa tie nt a dvo c a te s, he a lth pro vide rs a nd fa ith le a de rs who a re PCOR tra ine d a nd c o mmitte d to impro ving the he a lth lite ra c y o f pa tie nts with multiple c hro nic dise a se s. No suc h stra te g y e xists in this re g io n. Mo st so lutio ns ha ve b e e n to p-do wn a nd ha ve no t fo c use d o n the pa tie nts’ fe lt ne e ds, no r susta ine d a c ro ss time . T he o ve ra ll g o a l o f this pro je c t is to de ve lo p a stro ng c o lla b o ra tive o f pa tie nt a dvo c a te s, he a lth pro vide rs a nd fa ith le a de rs who ha ve c umula tive a nd susta ine d kno wle dg e a b o ut c linic a l pra c tic e s tha t put the pa tie nt first a nd tho se pra c tic e s tha t have b e e n sho w to b e e ffe c tive with pa tie nts with multiple c hro nic c o nditio ns – e spe c ia lly Afric a n Ame ric a ns. Pub lic Ab stra c t Ha ndo ut

• PROJE

CT OVE RVI E W – ABST RACT (2)

F ive K e y Pro je c t Ob je c tive s: 1) E xpa nd the c o lla b o ra tive me mb e rship b y ide ntifying two a c tive pa tie nt a dvo c a te s in e a c h o f the fo ur c o untie s a nd e ig ht pro vide rs to b e pa rt o f the c o lla b o ra tive a nd c o nduc ting se ve n info rma tio n a nd pla nning me e ting s; 2) De ve lo p a dig ita l le a rning a nd c o mmunic a tio ns to o l tha t will suppo rt c urre nt a nd future disse mina tio n o f c o lla b o ra tive a c tivitie s a nd PCOR-CE R finding s; 3) De ve lo p a pa tie nt a nd pro vide r-re le va nt c urric ulum fo r six struc ture d wo rksho ps tha t fo c us o n the ke y princ iple s, e le me nts a nd finding s o f PCOR-CE R a nd c o nduc t five struc ture d wo rksho ps o ve r a 14-mo nth pe rio d; 4) De ve lo p the c o nte nt a nd struc ture fo r fo ur-e ig ht pa tie nt e ng a g e me nt e ve nts with 240 pa tie nts a nd e ng a g e with the le a de rs to c o nduc t the pa tie nt e ve nts b e twe e n mo nths 10-24; 5) During ye a r two , e ng a g e in e xpa nde d de ve lo pme nt a c tivitie s to susta in the Co lla b o ra tive .

Que stio ns a nd Cla rific a tio ns

• T

he Struc ture o f the Pro je c t (1)

$250,000.00 c ontra c t for two ye a rs Ja nua ry 1, 2018 throug h De c e mbe r 31, 2019 T

he Pa rtne rs Be ula h Ba ptist Churc h, L a nc a ste r Co unty

• Mt. Olive Ba ptist Churc h, No rthumb e rla nd Co unty

Se c o nd Ba ptist Churc h, Ric hmo nd Co unty Pe nding - We stmo re la nd Co unty Gle nna n Ce nte r fo r Ge ria tric s a nd Ge ro nto lo g y, E a ste rn Virg inia Me dic a l Sc ho o l No rthe rn Ne c k He a lth, I nc . Ra ppa ha nno c k Ge ne ra l Ho spita l (Bo n Se c o urs) Ba y Ag ing Rive rside He a lth Syste ms (Pe nding )

T he Struc ture o f the Pro je c t (2)

Pr

• je c t Pe r

sonne l

L a ve rne Mo rro w Ca rte r, Ph.D., MPH – Pro je c t Dire c to r Ha ro ld Bla c kwe ll, Co -Pro je c t Dire c to r Da isy Burre ll, Pa tie nt Advo c a te s Co o rdina to r Pa tric ia Buffa lo e , Administra tive a nd Outre a c h Spe c ia list Ope n – Dig ita l Me dia Assista nt Ro b e rt Pa lme r, MD, MPH – Gle nna n Ge ria tric Ce nte r, E a ste rn Virg inia Me dic a l Sc ho o l (Co nsulta nt) K e ne shia Mo o re -Brya nt, Ph.D., Unive rsity o f Arka nsa s fo r Me dic a l Sc ie nc e s (Co nsulta nt)

• K

e y ACT I VI T I E S

Ye a r One

Se ve n Co lla b o ra tive Me e ting s (Ma rc h=2; Ma y =1; July=1;

Aug ust=1; Oc to b e r=1; a nd De c e mb e r=1)

De ve lo p a nd de plo y a mo b ile a pp fo r e duc a tio n a nd

c o mmunic a tio ns

Pre pa ra tio n fo r Pa tie nt E

duc a tio n a nd F e e db a c k (E ng a g e me nt) me e ting s in Ye a r 2

Atte nd PCORI

Na tio na l F a ll Me e ting

Sub missio n o f a se c o nd E

ng a g e me nt Awa rd a pplic a tio n tha t fo c use s o n Me nta l He a lth I ssue s in the Re g io n (2019)

Ye a r 1 Sc he dule Ha ndo ut

K e y ACT I VI T I E S

Ye a r 2

Se ve n Co lla b o ra tive me e ting s (o ne will b e a

Pa sto rs’ Bre a kfa st in Ja nua ry 2019)

4-8 Pa tie nt E

ng a g e me nt Me e ting s in e a c h o f the fo ur c o untie s. T his is fo c use d o n dra wing the e ntire c o mmunity – mo re tha n c o ng re g a nts in the c hurc he s.

Wo rk with E

a ste rn Virg inia Me dic a l Sc ho o l to a pply fo r la rg e r inte rve ntio n g ra nts fro m Na tio na l I nstitute s o f He a lth a nd/ o r PCORI

• WHAT

I S PCOR a nd WHY I S I T I MPORT ANT :

Wha t is re se a rc h? Pa tie nt-Ce nte re d Outc o me s Re se a rc h (PCOR) he lps a nswe r the se q ue stio ns?

“Give n my pe rso na l c ha ra c te ristic s, c o nditio ns, a nd pre fe re nc e s, wha t sho uld I e xpe c t will ha ppe n to me ? ” “Wha t a re my o ptio ns, a nd wha t a re the po te ntia l b e ne fits a nd ha rms o f tho se o ptio ns? ” “Wha t c a n I do to impro ve the o utc o me s tha t a re mo st impo rta nt to me ? ” “Ho w c a n c linic ia ns a nd the c a re de live ry syste ms the y wo rk in he lp me ma ke the b e st de c isio ns a b o ut my he a lth a nd he a lth c a re ? ”

Ho w is this re se a rc h do ne ?

E ng a g e s pa tie nts in a ll le ve ls o f the re se a rc h Use s ma ny diffe re nt se tting s a nd a dive rsity o f pa rtic ipa nts L

• o ks a t tre a tme nt fo c using o n b o th huma ns a nd syste ms.

WHAT I S CE R a nd WHY I S I T I MPORT ANT :

Co mpa ra tive Clinic a l E

ffe c tive ne ss Re se a rc h

Co mpa re s the e ffe c tive ne ss o f two o r mo re a ppro a c he s to he a lth c a re I t lo o ks a t the risks a nd b e ne fits o f e a c h I t c a n ide ntify whic h o f a va ila b le tre a tme nts b e st me e t the ne e ds

• f a g ive n po pula tio n

So me a re a s o f fo c us a re

Pre ve ntio n, Sc re e ning , Dia g no sis a nd T re a tme nt Me tho ds to impro ve the de live ry o f c a re Ho w he a lthc a re syste ms a re struc ture d I nte rve ntio ns tha t re duc e o r e limina te dispa ritie s He a lth c o mmunic a tio ns te c hniq ue s

• PCORI

Re se a rc h a nd Vulne ra b le Co mmunitie s

https:/ / www.yo utub e .c

• m/ wa tc h? v=T

c lI Dv8u8 WE

https:/ / www.yo utub e .c

• m/ wa tc h? v=Vg SN3lAi

YK g

Pa sto rs fo r PCOR Pro je c t - Chic a g o

Que stio ns a nd Cla rific a tio ns

• T

hro ug h the Clinic ia ns E ye s: T he Burde n o f Pa tie nts with Multiple Chro nic Co nditio ns

• Dr. Palme r jo ine d the E

VMS Gle nnan Ce nte r afte r se rving as Clinic al Dire c to r o f Ge riatric Me dic ine and Vic e Chair in the De partme nt o f I nte rnal Me dic ine at T he Unive rsity o f Pittsburg h Sc ho o l o f Me dic ine . F ro m 1994- 2008, Dr. Palme r se rve d as the Se c tio n He ad o f Ge riatric Me dic ine at the Cle ve land Clinic F

• undatio n in Cle ve land. He re c e ive d his

me dic al de g re e fro m the Unive rsity o f Mic hig an Me dic al Sc ho o l in Ann Arbo r; and c o mple te d an I nte rnal Me dic ine Re side nc y at the L

• s Ang e le s Co unty, Unive rsity o f

So uthe rn Califo rnia Me dic al Ce nte r. He c o mple te d a Ge riatric Me dic ine F e llo wship at UCL A whe re he also re c e ive d a Maste rs o f Public He alth (MPH).

• Dr. Palme r is c e rtifie d by the Ame ric an Bo ard o f I

nte rnal Me dic ine and is a Diplo mat in Ge riatric Me dic ine . He has re c e ive d nume ro us awards inc luding the Spe c ial Re c o g nitio n Award fro m the Ame ric an Ge riatric s So c ie ty in 2009 fo r se rvic e o n Clinic al Prac tic e and Mo de ls o f Care , T

• p Do c to r Re c o g nitio n Awards, T

e ac he r o f the Ye ar in Ge riatric s fro m the Cle ve land Clinic , and he has be e n a pre se nte r at the White Ho use Co nfe re nc e o n Ag ing o n Ge riatric He althc are Wo rkfo rc e I ssue s.

Que stio ns

• CL

OSI NG PRAYE R

De ar frie nd, I pray that yo u may e njo y go o d he alth and that all may go we ll with yo u, e ve n as yo ur so ul is ge tting alo ng we ll. 3 Jo hn 1:2 NI V

NE XT ME E T ING

Sa turda y, Ma y 12, 2018; 11:00 a .m. - 1:00 p.m.

Wha t is PCOR-CE R a nd T he Be ne fits to Pa tie nts a nd Pro vide rs F a c ilita to rs:

L a ve rne Morrow Ca rte r, Ph.D., MPH RE

E SSI

Robe rt Pa lme r, M.D., MPH, E

a ste rn Virg inia Me dic a l Sc ho o l

Ke ne shia Moore - Brya nt, Ph.D. Unive rsity o f Arka nsa s fo r Me dic a l Sc ie nc e s

BACKGROUND: PCORI In T he Northe rn Ne c k

Wha t is HE

AL T H L IT E RACY? T he ability to obtain, pr

• ce ss, and unde r

stand basic he alth info rmatio n and se rvic e s ne e de d to make appro priate he alth de c isio ns.

Wha t a re MUL

T IPL E CHRONIC CONDIT IONS (MCC)? Chro nic c o nditio ns a re c o nditio ns tha t la st a ye a r o r mo re a nd re q uire o ng o ing

me dic a l a tte ntio n a nd/ o r limit a c tivitie s o f da ily living . T he y inc lude b o th physic a l c o nditio ns suc h a s a rthritis, he a rt dise a se , dia b e te s, c a nc e r, a nd HI V infe c tio n. Also inc lude d a re me nta l a nd c o g nitive diso rde rs, suc h a s o ng o ing de pre ssio n, sub sta nc e a ddic tio n, a nd de me ntia . MCC a re c o nc urre nt c hro nic c o nditio ns. I n o the r wo rds, multiple c hro nic c o nditio ns a re two o r mo re c hro nic c o nditio ns tha t a ffe c t a pe rso n a t the sa me time . F

• r e xa mple , e ithe r a pe rso n with a rthritis a nd hype rte nsio n o r a pe rso n with

he a rt dise a se a nd de pre ssio n, b o th ha ve multiple c hro nic c o nditio ns.

• BACKGROUND: PCORI In T

he Northe rn Ne c k

Some ke y fa c ts from the U.S. De pa rtme nt of He a lth a nd Huma n

Se rvic e s a bout MCC:

Appro xima te ly o ne in fo ur Ame ric a ns ha s MCC, inc luding o ne in 15 c hildre n. Amo ng Ame ric a ns a g e d 65 ye a rs a nd o lde r, a s ma ny a s thre e o ut o f fo ur pe rso ns ha ve MCC. I n a dditio n, a ppro xima te ly two o ut o f thre e Me dic a re b e ne fic ia rie s ha ve MCC. Pe o ple with MCC a re a lso a t inc re a se d risk fo r de a th a nd po o re r da y-to - da y func tio ning . As a n individua l’ s numb e r o f c hro nic c o nditio ns inc re a se s, the individua l’ s risk fo r dying , ho spita liza tio ns tha t c a n b e a vo ide d, a nd e ve n re c e iving c o nflic ting a dvic e fro m physic ia ns a nd o the r he a lth c a re pro vide rs inc re a se s.