Discrepancies in Self-Report Diabetes Survey Questions y Q using - - PowerPoint PPT Presentation

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Discrepancies in Self-Report Diabetes Survey Questions y Q using - - PowerPoint PPT Presentation

Discrepancies in Self-Report Diabetes Survey Questions y Q using NHANES, NHIS, and CHIS data Sarah Lessem National Center for Health Statistics CDC N ti l C t f H lth St ti ti CDC Behavioral Scientist DC-AAPOR WSS Summer


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SLIDE 1

Discrepancies in Self-Report Diabetes Survey Questions y Q using NHANES, NHIS, and CHIS data

Sarah Lessem N ti l C t f H lth St ti ti CDC National Center for Health Statistics – CDC Behavioral Scientist DC-AAPOR – WSS Summer Conference Preview/Review August 3, 2015

Accepted for 2015 International Total Survey Error Conference Accepted for 2015 International Total Survey Error Conference

Department of Health and Human Services Centers for Disease Control and Prevention

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SLIDE 2

Disclaimer

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SLIDE 3

Discrepancies in Reporting p p g not Discrepancies in Health

  • Using diabetes as an example to show discrepancies

in data quality da a qua y

  • Harder to understand health disparities when data quality

varies by demographic varies by demographic

  • Using survey data as a indicator of response process

g y p p

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SLIDE 4

Three Datasets

  • National Health and Nutrition Survey 1999-2012 (NHANES)
  • National Health Interview Survey 1997-2013 (NHIS)
  • California Health Interview Survey 2003 2012 (CHIS)
  • California Health Interview Survey 2003-2012 (CHIS)
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SLIDE 5

Data Discrepancies p

  • Diagnosed at a Young Age – No Insulin (NHANES; NHIS; CHIS)
  • Type 1 - No Insulin (CHIS)
  • Medication Mismatch (NHANES)
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SLIDE 6

Type 1 & Type 2 Diabetes yp yp

Type 1 Type 2 Insulin Age of Diagnosis

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SLIDE 7

Type 1 & Type 2 Diabetes yp yp

Type 1 Type 2 Insulin Always Age of Diagnosis

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SLIDE 8

Type 1 & Type 2 Diabetes yp yp

Type 1 Type 2 Insulin Always Sometimes Age of Diagnosis

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SLIDE 9

Type 1 & Type 2 Diabetes yp yp

Type 1 Type 2 Insulin Always Sometimes Age of Diagnosis Any age (most often <30 years) (most often <30 years)

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SLIDE 10

Type 1 & Type 2 Diabetes yp yp

Type 1 Type 2 Insulin Always Sometimes Age of Diagnosis Any age (most often <30 years) Currently: 10 years+ Prior to 1990: 20 years+ (most often <30 years) Prior to 1990: 20 years+

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SLIDE 11

Discrepancy 1: Discrepancy 1:

Reports: Diagnosed at a Young Age and Do Not Take Insulin

  • National Health and Nutrition Survey (NHANES)
  • National Health Interview Survey (NHIS)
  • California Health Interview Survey (CHIS)
  • California Health Interview Survey (CHIS)
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SLIDE 12

How old were you when a doctor or other health professional FIRST told you that you had diabetes or sugar diabetes?

  • Reports under age 10 in any year

k l ?

  • Reports under age 20 pre-1990

Are you NOW taking insulin?

  • No

Younger Diagnosis Older Diagnosis Takes Insulin Type 1 Type 1 or Type 2 N I li ???? T 2 No Insulin ???? Type 2

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SLIDE 13

Percentage reporting young age of diagnosis Percentage reporting young age of diagnosis who do not report insulin

NHANES NHIS CHIS

Overall 55.4% 47.2% 42.0% Younger Diagnosis Older Diagnosis Takes Insulin Type 1 Type 1 or Type 2 No Insulin ???? Type 2

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SLIDE 14

Percentage reporting young age of diagnosis g p g y g g g who do not report insulin

Age categories

NHANES*** NHIS*** CHIS**

Gender

NHANES NHIS CHIS 18-44 27.8% 28.0% 32.4% 45-64 60.3% 50.8% 46.4% NHANES* NHIS CHIS Male 46.4% 45.6% 43.6% Female 64.1% 48.7% 40.0% 65+ 74.3% 71.2% 66.3%

Race

NHANES*** NHIS*** CHIS*** White 50.4% 42.9% 25.6% White 50.4% 42.9% 25.6% Black 50.9% 52.8% 34.1% American I di

  • 66.3%

35.1% Indian Asian

  • 70.7%

68.5% Hispanic 82.1% 58.7% 69.5%

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SLIDE 15

Percentage reporting young age of diagnosis g p g y g g g who do not report insulin

Educational Attainment

NHANES ** NHIS*** CHIS** < High School 73.3% 59.0% 65.8% High school/GED 47.0% 49.1% 58.4% Some College /AA 51.5% 42.3% 25.5%

Insurance

NHANES NHIS*** CHIS** g Bachelors + 25.7% 34.1% 26.5%

Poverty Status

NHANES NHIS*** CHIS** NHANES NHIS*** CHIS** Private 48.2% 40.4% 28.2% Public 68.1% 51.7% 50.6% NHANES NHIS CHIS <200% 61.8% 54.9% 57.3% 200%-399% 50.0% 40.8% 47.4% Uninsured 47.5% 57.1% 61.1% 400% + 49.7% 36.0% 18.7%

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SLIDE 16

Discrepancy 2: Discrepancy 2:

Reports: Type 1 Diabetes and Do Not Take Insulin

  • California Health Interview Survey (CHIS)
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SLIDE 17

Were you told that you had type 1 or type 2 diabetes?

[IF NEEDED, SAY: “type 1 diabetes results from the body’s failure to produce insulin and is usually diagnosed in children and young adults. Type 2 diabetes results from insulin resistance and is the most common form of diabetes ”] results from insulin resistance and is the most common form of diabetes. ]

  • Type 1

Are you currently taking insulin?

  • No

Type 1 Type 2 Insulin Use Always Sometimes No Insulin Use Never Sometimes

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SLIDE 18

Percentage of respondents reporting Type 1 Diabetes who do not report insulin

60 3% 60.3%

Type 1 Type 2 Insulin Use Always Sometimes No Insulin Use Never Sometimes

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SLIDE 19

Percentage of respondents reporting Type 1 Diabetes who do not report insulin

Age categories**

18-44 53.2%

Education***

<High School 77 5% 45-64 62.1% 65+ 67.4% <High School 77.5% High School/GED 60.5% Some College/AA 47.2% Bachelors+ 40.8%

Gender

Male 62.4% l %

Insurance Status***

Female 57.5%

Race***

Private 46.7% Public 63.5% No Insurance 75.2% NH White 34.2% NH Black 54.8% A i I di 50 0%

Poverty Ratio***

<200% 69 1% American Indian 50.0% Asian 76.8% Hispanic 74.0% <200% 69.1% 200%-399% 57.8% 400% + 40.6%

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SLIDE 20

Discrepancy 3 Discrepancy 3

Diabetes Medication Mismatch: Responds “Yes” when asked if takes diabetes pills

  • r insulin, but not listed in medication inventory
  • r vice versa
  • National Health and Nutrition Survey (NHANES)
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SLIDE 21

Are you NOW taking diabetic pills to lower your blood sugar?

These are sometimes called oral agents or oral hypoglycemic agents.

Are you NOW taking insulin? _______________________________________________________ In the past month have you used or taken medication for which a prescription is needed?

Are you NOW taking pills? Are you NOW taking insulin? g p Yes No Pills in In entor Takes Pill ??? g Yes No Insulin in In entor Takes I li ???

OR

Inventory Pills Pills not in Inventory ??? No Pills Inventory Insulin Insulin not in Inventory ??? No Insulin

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SLIDE 22

Percentage of Respondents with Diabetes Medication Mismatch

10.6%

Are you NOW taking pills? Are you NOW taking insulin? g p Yes No Pills in In entor Takes Pill ??? g Yes No Insulin in In entor Takes I li ???

OR

Inventory Pills Pills not in Inventory ??? No Pills Inventory Insulin Insulin not in Inventory ??? No Insulin

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SLIDE 23

Percentage of Respondents with Diabetes Medication Mismatch

A t i * Education***

<High School 13 8%

Age categories*

18-44 10.0% 45-64 8.6% <High School 13.8% High School/GED 11.6% Some College/AA 9.4% 65+ 13.2% Bachelors+ 5.4%

Gender Insurance Status**

Male 11.0% Female 10.3% Private 8.7% Public 13.7% No Insurance 11.3%

Race

NH White 10.3% NH Bl k 11 7%

Poverty Ratio*

<200% 12 1% NH Black 11.7% Hispanic 12.6% <200% 12.1% 200%-399% 10.1% 400% + 6.9%

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SLIDE 24

Summary

  • Discrepancies in Reporting Diabetes Data

Discrepancies in Reporting Diabetes Data

  • Similar patterns across datasets
  • Similar patterns across datasets
  • Highest Rates of Discrepancies among:

g est ates o sc epa c es a

  • g
  • Older ages
  • Hispanics & Asians
  • Lower Education
  • Uninsured

Lo er Income

  • Lower Income
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SLIDE 25

Thank You

Sarah Lessem l @ d slessem@cdc.gov Telephone: 301.458.4209

The findings and conclusions in this report are those of the author and do not necessarily represent the official position of the Centers The findings and conclusions in this report are those of the author and do not necessarily represent the official position of the Centers for Disease Control and Prevention.

Department of Health and Human Services Centers for Disease Control and Prevention