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How is the Quality of PatientGenerated Health Data Managed in - - PowerPoint PPT Presentation

How is the Quality of PatientGenerated Health Data Managed in Diabetes Remote Monitoring? Robab Abdolkhani Kathleen Gray Ann Borda Ruth DeSouza Health and Biomedical Informatics Centre (HaBIC), The University of Melbourne 05 February


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How is the Quality of Patient­Generated Health Data Managed in Diabetes Remote Monitoring?

Robab Abdolkhani; Kathleen Gray; Ann Borda; Ruth DeSouza

Health and Biomedical Informatics Centre (HaBIC), The University of Melbourne 05 February 2019

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BACKGROUN D

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451 million

in 2017

(age 18­99 years)

552 million by 2030

Global healthcare expenditure on people with diabetes in 2017

USD 850 billion

Cho NH, Shaw JE, Karuranga S, Huang Y, da Rocha Fernandes JD, Ohlrogge AW, Malanda B. IDF Diabetes Atlas: global estimates of diabetes prevalence for 2017 and projections for 2045. Diabetes research and clinical practice. 2018 Apr 1;138:271-81.

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We should bring care to patients instead of patients to care

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Remote Patient Monitoring

Kitsiou S, Paré G, Jaana M, Gerber B. Effectiveness of mHealth interventions for patients with diabetes: an overview of systematic

  • reviews. PloS one. 2017 Mar 1;12(3):e0173160.

✓ Better access to healthcare ✓ Improved quality of care ✓ Peace of mind and daily assurance ✓ Improved support, education and feedback

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Ho A, Hao M, Yu X, An T. Business model for glucose monitoring smartwatch. MT5016 Business model for Hi-Tech products. National University of Singapore. 2014

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https://www.fda.gov/MedicalDevices/ProductsandMedicalProcedures/HomeHealthandConsumer/ConsumerProducts/ArtificialPancreas/ ucm259548.htm

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Flash Glucose Monitoring

https://www.freestylelibre.us

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✓ Wearables used in diabetes RPM are medical-grade devices ✓ They are tested in terms of accuracy and safety ✓ Data is collected automatically

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D A T A M A N A G E M E N T ! ! ! DATA QUALITY!!!

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Patient Generated Health Data

  • Patients, not clinicians, are primarily

responsible for capturing or recording these data

  • Data are collected outside the clinical

setting

  • Patients may choose how and with

whom they can share their health data

  • No guidelines exist to define PGHD

management process and to ensure PGHD quality

Shapiro M, Johnston D, Wald J, Mon D. Patient-generated Health Data: White Paper Prepared for the Office of the National Coordinator for Health IT by RTI International 2012. Available from: https:// www.healthit.gov/sites/default/files/rti_pghd_whitepaper_april_2012.pdf.

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Poor Data Quality

Is One of the Main Reasons for Low Adoption of PGHD in Clinical Practices

HIMSS Media. Healthcare coaching: multiplying the value of wearables and patient-generated health data 2018. Available from: https:/ /2nwchq3a3ags2kj7bq20e3qv-wpengine.netdna-ssl.com/wp-content/uploads/FINAL_HIMSS_FitBit_WP_10.01.20181.pdf.

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Accessibility Accuracy Consistency Interpretation Relevancy Timeliness Institutional Environment

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METHODS

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Care Providers (CPs) (at 5 clinical settings)

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Information Professionals (IPs)

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RPM Solution Providers (SPs)

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  • 2 Endocrinologists
  • 4 Diabetes Educators
  • 2 Chief Information Officers
  • 1 Health Informaticians
  • 1 IT managers
  • 1 CGM Manufacturer
  • 2 PGHD integration Service

Providers

  • 3 RPM Consultants
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Participants asked to:

  • Describe PGHD management

process

  • Discuss PGHD quality challenges

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RESULTS & DISCUSSIO N

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PGHD Management Process in Diabetes Remote Monitoring

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Data Quality Challenges during PGHD Management­CPs

Perspectives Institutional Environment Accuracy

  • Calibration
  • Errors in manual data

entry

  • Wrong application on

body Inaccurate measuring

Interpretation

Complicated data visualisation Lack of PGHD integration with current EMR ( IT infrastructures, health IT staff, guidelines) No access to raw data Difficulty in accessing different portals

Accessibility Interpretation

High volume of information presented

Relevancy

Difficulty in prioritising relevant information

Timeliness

No real-time data access

PEOPLE PROCESS TECHNOLOGY

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Different devices and different data transmission standards Lack of PGHD integration with current EMR ( IT infrastructures, health IT staff, guidelines) Difficulty in accessing different portals

Data Quality Challenges during PGHD Management­IPs

Perspectives Accessibility Institutional Environment Accessibility

Data access by hackers

Consistency

PEOPLE PROCESS TECHNOLOGY

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Lack of automation in contextual data collection

  • Complicated data

visualisation

  • Lack of context

PEOPLE PROCESS TECHNOLOGY

Data Quality Challenges during PGHD Management­SPs

Perspectives Accuracy

Lack of PGHD integration with current EMR ( IT infrastructures, health IT staff, guidelines)

Institutional Environment Consistency

Difficulty in realising patient’s status due to inconsistent reports

Interpretation

Calibration Lack of motivation

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CONCLUSIO N

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Need for:

PGHD management protocols (interoperability, terminology standards, etc.) PGHD quality guidelines Digital health literacy Collaboration, collaboration, collaboration

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rabdolkhani@student.unimelb.edu.au

https://www.hisa.org.au/blog/wearehealthinformatics/robab-abdolkhani/

MAY 2019

THANK YOU!