Patient Experience in the Cancer Care System Elizabeth (Lib) - - PowerPoint PPT Presentation

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Patient Experience in the Cancer Care System Elizabeth (Lib) - - PowerPoint PPT Presentation

Patient Experience in the Cancer Care System Elizabeth (Lib) Cooper RN November 5, 2016 Presentation Agenda Overview of Treatments and 1 Services at


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Elizabeth (Lib) Cooper RN November 5, 2016

Patient Experience

in the

Cancer Care System

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Presentation Agenda

Overview of Treatments and Services at cancer agency

1

Definition of Palliative Approach to Care

2

Overview Pain and Symptom Palliative Care Program

3

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Centre for the North

Sindi Ahluwalia Hawkins Centre For the Southern Interior

Abbotsford Centre Fraser Valley Centre Vancouver Centre Vancouver

Island Centre

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What do They Feel?

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First Visit

  • Meet with oncologist and

nurse

  • History and Physical
  • Need more information
  • Tests will be ordered
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First Visit cont’d.

  • Treatments explained
  • May be referred to medical
  • ncology, radiation
  • ncology, surgery, pain and

symptom management

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Confused

Questions?

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❑ 55 Year old female ❑ Severe Pain right chest wall, ribs ❑ Anxiety++++ ❑ Referred to pain and symptom nurse by surgical suite nurse (bronchoscopy) for severe right sided chest pain ❑ Substance abuse (actively using)

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Patient

Nutrition Oncologist Pain and Symptom Manageme nt/Palliative Care Clinic Patient and Family Counseling

Nurse

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❑ Respiratory Therapy ❑ General Practitioner ❑ Nurse Practitioner ❑ Homecare Team

❑Secretaries and Unit Clerks

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Patient

Surgical Suite Clinics Chemo Room Radiation Therapy Area Phone Line

Nurses Available in….

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  • Surgery
  • Radiation

Therapy

Radiation Therapy

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  • Surgery
  • Radiation

Therapy

Surgery

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  • Surgery
  • Radiation

Therapy

Chemo- therapy

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  • Surgery
  • Radiation

Therapy

Hormonal Therapy

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  • Surgery
  • Radiation

Therapy

Targeted Therapies

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CUTTING EDGE

Personalized Oncogenetic Genome

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Looks at the individual cancer cells.

POG Study

Reduce Tumours Identify Drivers Block Growth

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POG Case Study

❑ Female 68 years old ❑ Metastatic colon cancer ❑ Chemotherapy ❑ Referred to pain and symptom management palliative care clinic

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POG Case Study

❑ Disease Recurred ❑ Identified Protein as driver

❑ Result?

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POG Case Study

❑Identified BP medication ❑Known to Block Pathways to Protein

Disease is barely detectable!

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Pain and Symptom Management/Palliative Care Helps improve quality of life for patient and caregivers For cancer related symptoms Pain, nausea, shortness of breath

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Pain and Symptom Management/Palliative Care For those with symptoms anywhere along trajectory Help with emotional and social concerns Assist with transitions, advanced care planning

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Pain and Symptom Management Team

Doctor with specialty in pain and symptom management/palliative care Nurse with specialty in pain and symptom management/palliative care Pharmacist, Counsellor

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Palliative Approach to Care

1

Many People are Cured of their Cancer

2

For Others becomes Chronic Disease

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Integrate Palliative Care Earlier

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“Palliative care is an approach that improves the quality of life of patients

WHO Definition of Palliative Care

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and their families facing the problem associated with life- threatening illness

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through the prevention and relief of suffering by means of early identification

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and impeccable assessment and treatment of pain and

  • ther problems,

physical, psychosocial and spiritual.”

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“…..is applicable early in the course of illness, in conjunction with other therapies that are intended to

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prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.”

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  • Palliative Care DOES NOT just

mean End of Life care

  • The illness does not need to

be incurable in order for a person to receive a palliative approach to care

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Dr.Pippa Hawley, January 2014

Disease Management Palliative Care

Cure Control Survivorship Hospice

Symptom Management and Supportive Care

The Bowtie Model of 21st Century Palliative Care

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Disease Management Palliative Care

Cure Control Survivorship Hospice

Symptom Management and Supportive Care

Cycle repeats

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Disease Management Palliative Care

Cure Control

Rehabilitation

Hospice

“Palliative Care is for Living Well”

Survivorship Bereavement

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Disease Management Palliative Care

R e s e c t i

  • n
  • f

b r e a s t t u m

  • u

r

Cure Control

Survivorship

Hospice

Pain and Symptom Management

“We need to look after the disease and the rest of you”

Expectation: Cure

Adjuvant chemoradiation Nutrition Information Counselling Tamoxifen Physio and Exercise

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Expectation Cure

❑ Breast cancer ❑ Post mastectomy neuropathic pain ❑ Referred to Pain and Symptom Clinic

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Disease Management Palliative Care

Surgery Radiotherapy Survivorship Hospice

Pain and Symptom Management

“We will always be part of your care team”

Expectation: Cure Unlikely

Nutrition Counselling Chemotherapy Hormone Rx Palliative Procedures Clinical Trial?

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What Does this Mean for you, the PeriAnesthesia Nurse?

➢ Inform your patients that there is always something that can be done. ➢ Educate yourselves and your colleagues about the palliative approach to care.

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What Does this Mean for you, the PeriAnesthesia Nurse?

➢ Refer early. ➢ Anyone can refer.

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What Does this Mean for you, the PeriAnesthesia Nurse?

➢ All cancer centres have chemotherapy, targeted therapies, radiation therapy, clinical trials, and pain and symptom management/ palliative care clinics